Hi
i was diagnosed with endometrial cancer just under two weeks ago and am going for a full hysterectomy on 16th September! I was told my womb is full but contained and is grade 1 level 1A and that’s the best it could be. I don’t really know what to expect from the op or how long I’ll be in as I’ve had conflicting answers! I have to go for injections in tummy next Tuesday but I’m not sure what they are for, does anyone know please? Since being given my diagnosis I’ve had no reaction at all!! Surely I should be upset, worried or even angry but as yet there’s been nothing!! Is this normal? I’m not sure if I’m in denial, don’t realise how dangerous a situation I’m in or what but having no feelings (for someone who is as soft as putty and can cry for England) is more of a worry!!
Hi and welcome to our spot in the Online Community. We've all been there in a state of disbelieving numbness - this isn't happening to me - is it?? Give your CNS a call and ask what the injections are for, normally we'll have them after surgery - anti clotting jabs. Ask what type of surgery you'll be having - laparoscopic (keyhole) means you'll only be in a day or two and healing is very quick.
A possibility of cancer diagnosis brings all sorts of stress and fears and if anyone can hold your hand and reassure you we will. We're all at the start, in the middle or the end of what can only be described as a roller-coaster ride. The ride no-one wants to get on.
It’s always helpful to others if you write a little something (or a lot) about yourself and your journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep repeating yourself. You can amend or update it at any time. If you’re not sure what to write, just click on my username.
If you want to ask any of us any questions please come back and do so. There's always someone around and we can offer a shoulder to cry on, a hand to hold or listen to a rant, we’re here for you.
It might also be a good idea to download this booklet Understanding Womb (Endometrial) Cancer. I found it invaluable on my journey.
Click on the link I’ve created to find out more information covering diagnosis and treatments for Womb cancer.
You might also find this link to what to take in my overnight bag useful. If you have to have surgery.
It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear. It's free to call on 0808 808 00 00 8am to 8pm, 7 days a week. Have a look to see what is available by Clicking here .
There is also an Ask an Expert section, but you should allow two working days for replies from our expert team.
Sending you welcoming hugs, B xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
"Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett
Hi Banquebop,
I was told after an MRI that they could see no cancer only fibroids but opted for a hysterectomy anyway as I had had trouble with bleeding for over a year. I was called back to the consultant after the histology to say it had actually been grade 1 stage 1a cancer like yourself. No more treatment is needed so am on patient led aftercare.
The procedure I had was cesarean cut. I was in hospital from Tuesday until Friday but everyone is different. I didn't have any injections in my tummy until after the op and that was for stopping blood clots when I was less mobile but only had them for a couple of days so I'm not sure what they are for with you.
You will probably find that you will have a lot of questions and there will usually be someone on the forum who can point you in the right direction for advice.
As for your feelings, I think sometimes it takes a while to sink in but it is always good to talk things through with someone whether it is a family member, your CNS, a counsellor or your GP. There is a telephone counselling service on this website that are there either for a telephone conversation or an online chat.
Good luck with your op on the 16th. I wish you all the best.
Amycdi xx
Hi Banquepop, It's quite a while ago for me as I had my hysterectomy in 2015 but I had to go to the hospital the evening before my operation to have an anti-clotting injection. I was asked to go as late as possible because I was on the list for the next morning so I might not have needed to if I was on a later slot.. Most people do have to do daily injections afterwards but the length of time for this seems to vary from place to place - some people only have a week of them, others 28 days. I had keyhole surgery and went home the next day. They say that this cancer is slow growing and very treatable so your current calmness sounds like a good idea!
XXXX
Anne
(Class of 2015!)
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