Hi everyone,
I had my MRI on Wednesday with contrast as planned to stage my endometrial cancer. The day after I had my appointment with the surgeon, who advised It shows stage 1a/b on mri, but can be restaged post surgery from pathology. I’m so relieved it seems to be the better one to have!- like I want to jump for joy, it’s still the horrid word of cancer.
He also said that the mri has shown a nodule on my adrenal gland, which completely threw me. I wasn’t expecting anything else on top of all the deluge of worry I already have. I honestly didn’t even know where my adrenal glands were situated! apparently they are cone shaped glands on the top of the kidneys- who knew! Every days a school day!
He booked me straight in for another mri to look in more detail at this, and the hospital rang me yesterday to say I have to go on Tuesday night at 7.15pm.
He has booked my total hysterectomy for the 30 September, hopefully laparoscopically, but I am now so worried about this other ‘thing’. I asked him if he could remove this at the same time, but he said no, I would have to be referred to a different specialist. My mind is now on fast spin, I am taking 2 diazepam at night just to make me able to lay and rest, but whatever anyone is saying to me,my ears can hear them, but I don’t feel able to actual listen and be part of the conversation. I suffer terrible social phobia, so just going out to the hospital is putting me through turmoil, I never go anywhere alone, and haven’t for many many years, honestly, I didn’t know I could worry any more than I have, but obviously there seems to be room for more!
Around my family I am putting on my best actress face, Oscar winning ! Saying I’m pulling my big girl pants up, everything is fine, don’t worry, - my 2 daughters are both pregnant due 10 days apart after xmas, and the last thing I want is any stress for them, but obviously they are grown women and need to know the ins and outs, so around them I am very much using the swan technique of calm on top but paddling like mad underneath, but my poor husband is seeing the real me, warts and all, the crying, worrying, ranting, & everything else that’s going on!
I send so much love to all you fabulous ladies in the group, it’s true to say when people say “ oh yes , I know what you mean….” It’s so great to know that yes, you do.
love Emm xx
Emmpea. Oh Emm what a shock for you, firstly you're trying to get your head around a cancer diagnosis then something else is thrown into the pot! I'd never heard of the womb being called the endometrium until I got a blooming hitchhiker in it! I've learned more medical terminology in the last year than in the previous 67 so always time to learn something new. You've got to be positive and concentrate on getting over your hysterectomy which will be all done before you know it.
The worst thing about all this is trying to hide your feelings around your family whilst presenting a beaming face to the world - Gustav Klimt's "The scream" springs to mind. I can understand you not wanting to cause stress to your daughters but have you talked to them about how you're feeling? Don't forget you can always call the Macmillan support line if you want to chat to someone, the numbers shown below.
It also might be an idea if your family takes a look at the Family and friends group. They'd be able to chat with others in the same situation so it might be useful.
Sending hugs, Barb x
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Hi Emmpea,
I had a similar experience. During my CT scan and my MRI scan they discovered that my thyroid was busily multiplying down the back of my throat!! I was told to see the throat people. I really thought I faced 2 operations, but in the end the throat people weren't too worried and put me on tablets! It's like having an MOT to fix you up for another few years!!!
Good luck with it all, xxxx
That’s a relief NannyAnny! It really throws you off balance though when they blind side you with another curve ball! I’m glad you’re ok, fingers crossed they say same to me, enough is enough now! Our mot’s would cost a fortune wouldn’t they?!
lots of love Emm xxx
Hello Emm, what a shock for you, I have found a similar situation when there is a problem elsewhere but your gynae sees it but cant do anything about but they are very good advocates for you and will make sure that if necessary the relevant people are informed and for a treatment plan be put in. But yeah its an added problem and worry you really didn’t need. How nice that both your daughters are due at the same time, are they wanting to know what they are having or keeping it all a surprise?, that will certainly be lovely thought of hope for New Year. Sometimes we need to have a great poker face i find i kinda hide things from my Dad but i have no chance with my Mum she knows everything. Good luck for your MRI on Tuesday I hope it goes ok.
Sending gentle bear hugs
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Hi, thank you so much for your reply. I have spoken to my daughters, one is very pragmatic and factual, the other is complete opposite like myself, a real softie! I just hate the fact that I have to burden them with this news when all they want and should be doing is having happy and joyful pregnancies. I’ve just had a nice long call with one of the specialist nurses, and she said to speak to ladies on this forum, as I don’t really have any female friends around to off load to. I’m just to think that the mri is to check the adrenal gland nodule, and that is all, until more is said, that’s all it is, and the surgery for my hysterectomy will go ahead no matter what. I feel a bit better just speaking to someone to be honest. Thanks again for your kindness.
love Emm xx
Aw GBear,
thank you for your reply. Yes, apparently the results whatever they may be will be discussed at the MDT meeting, so I just hope & pray it comes to nothing. Just extra worry I could definitely do without! We already have one grandaughter from our eldest daughter, she wants to know what she is having again this time, but our youngest daughter is a first time mama and doesn’t want to know, she wants a complete surprise, so it will be lovely, and certainly my aim to get well so I can be a proper Gran and look after them! Take care of yourself GBear, lots of love Emm xx
Hi Barb, thank you so much for your understanding, it really means a lot to me.
the new language is like a crash course in “cancer” & taking your final exams within days! It’s mind blowing isn’t it?
madness!
I definitely feel a little easier having spoken to my specialist nurse, & I know I’m picking & choosing what and when to say anything to my girls, it’s just mums being protective I know, the main thing is they are there for me, and for that I am so thankful.
Thank you so much for your message, take care of yourself, love Emm xx
Hi Emm,
Welcome to the forum, and although most of us would prefer not to find ourselves here, it's a friendly and helpful place when having to deal with a cancer diagnosis. It can be easier to talk to strangers than family sometimes, especially when those strangers understand your worries and become companions on your journey. Good to hear though that you have shared some of your concerns with your daughters.
Your headline made me smile - haven't been in a supermarket for a long while but remember wrestling my items reluctantly past the scanner and into a bag!
My MRI scan last year showed a nodule in one of my lungs. As an ex-smoker (and heavy one at that) having previously had pneumonia and bronchitis at various stages of my life, this gave me a shock. However, the medical folk didn't seem concerned and focused on dealing with my 1b grade 2 endometrial cancer.
Post-op I started to worry about this nodule again, and had a CT scan approx 6 months later, which confirmed no change to the nodule thankfully. My original MRI also showed I have gallstones (no symptoms as yet!) and the beginnings of diverticulitis (years ago I'd been told that pains in my side were from a hiatal hernia but scans confirm this is not so). I see all my scans as a form of MOT - and hopefully positive in that I'm being monitored for more than a recurrence of womb cancer. I don't know whether my experience is of any help in easing your worries - I know I was anxious until the re-scan and am more sanguine about my insides now than before.
Hope all goes well with you at the end of the month. The waiting is the hardest to bear!
Dx
Hi D,
thank you so much for your kind reply. Honestly, your words are a great comfort, anyone who can say “I know how you feel” at the moment, and actually can, I take so much comfort from. I’m so glad you’re ok now, I think the main thing with me was the fact I completely did not realise nor visualise any other possibility there could be anything else! - call me gullible! But it took the wind out of my sails! This forum is so supportive, and I thank every person on here, without whom in the past couple of weeks my cope ability to deal with this would have been dreadful, - much more than it actually is now.
Take care & stay well, love Emm xx
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