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Hi MogwaiMac,

I think you should get in touch with her CNS, and tell her about the eating issues. You can get nutritious drinks on prescription. (My husband had them - see my profile) xxxx

Thank you NannyAnny! I’ve been trying to call her nurse and tbh she’s really hard to get hold of and we’ve not had any information about what to expect so we are completely feeling left adrift at the moment! I’ll call her GP again today I think and see if they can sort something for her. 
thank you and I read your profile, fantastic to hear you’re well. My mum nursed me through breast cancer too when I was 38. I’m 53 now and going strong. I just wish I could help my mum more and believe me I’m making lots of noise with the doctors but they don’t seem to be responding at the moment and it’s proving very frustrating. I was thinking of buying her some complan or something similar but I’ll ask the doctor now, thank you again xx

Hi again,

I was going to say- make a lot of noise. We have learnt not to put up with anything, and to ask for help. My husband had two sorts of drinks. The first he tried were in a little bottle. They were called Fortisips. Bear in mind this was 12 years ago and it has probably all changed. He hated them, but then they gave him a powder which he mixed with milk. They had different flavours. Use anything to get calories into her. I put cream in soups, used a lot of cheese sauce to flavour things, and get calories in. There used to be a booklet about feeding people who had cancer. Maybe MRS BJH could point you to it. (I've forgotten how to tag people. I'm useless on a computer!!) xx

The windpipe is the oesophagus. I hope your mum gets some pain relief soon. Deb

Hello ,

Sorry to hear about your Mum problems with eating i don’t know if this will help but heres the booklet NannyAnny was referring too https://www.macmillan.org.uk/cancer-information-and-support/impacts-of-cancer/eating-problems. I hope too that you are able to get hold of her Doctor or CNS to help you further as I haven’t had experience like what your Mum has but I know my appetite was effected for a long time after my treatment.

sending gentle bear hugs  

Thanks, GBear,

, your Mum may be better eating little and often.  xxxxx

Thank you this is great! 
I am pleased to say that after a bedridden painful week of not wanting to eat I turned up yesterday and she had managed to get herself up and showered and hair washed and was sat in the living room with her feet up, lippy on and she wanted egg butties for lunch I was soooo pleased that she was feeling better. 

I had got through to the CNS and GP and feel more confident now that when the time comes we will be able to get her assessed for a care package. 

thank you for the good tips and booklet re the food too

bear hugs received and sending some back xx  

Thank you GBear, I replied to you both on NannyAnny’s post but wasn’t sure how to tag you big hugs back

Hi Deborino

The windpipe is the same as the trachea and goes to the lungs and the oesophagus goes to the stomach. They are right next each other though so I wondered if the obstruction to the windpipe could cause the oesophagus to constrict a bit too and make her feel fuller quicker... doc said it could well be a factor. She is much better today though and it’s all very recent we were told she was cured 4 years ago so this came as a shock a couple of weeks ago. They had her down as suffering with COPD so she had been putting her breathlessness down to that for months and months. Fingers crossed she will be okay now for as long as possible 
xx

Hi MogwaiMac,

Glad to hear she is feeling better. I know just how you feel with the egg butties!!! I had about a year of my husband unable to eat. He was tube fed at home part of the time.You take the ability to eat and swallow so much for granted!! xxx