It's just hit me.

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I don't want to bore everyone with my list of ailments but it suddenly hit me tonight as I was watching TV that I just want a normal life. I was diagnosed out of the blue in  2018 with cirrhosis of the liver. A bit surprising as I've never really drank alcohol. It has had a huge impact on my life as I am monitored constantly for bleeds in my oesophagus and stomach and 6 monthly scans on my liver in case it develops cancer. Oh the irony! I was told when I was first diagnosed that my lifespan would be shortened. I was admitted to hospital last year with bleeds from ulcers and varices 8 times between September and boxing Day. I was in for 20+ days obviously with no visitors the longest stretch was 9 days. I had  8 endoscopies with treatment for the bleeding and was on iv drugs for 9 days. I've had bleeds since but haven't gone to the hospital as I can't face it. Unfortunately last year because of covid, patients were just put on any ward as the hospital was packed. This meant that inevitably there were many patients with dementia on the wards which didn't make for a restful sleep. I actually discharged myself at Christmas as there were no doctors around and I was left for two days nil by mouth with no fluids prescribed. I've had several previous surgeries and just got on with it but having cancer is just overwhelming. My family and friends are all wonderful and keep in touch regularly but sometimes I think they must think oh for heaven's sake, what's wrong with her now?!

I apologise for my pity party and promise to buck up my ideas. Have a great weekend everyone. Deb

  • FormerMember
    FormerMember

    Hi Deb

    Don't apologise for anything xxx I'm not sure what I have yet but whatever it is my life has completely changed, nowhere near  the problems you have but it it very hard to deal with I know.  I struggle saying anything to anyone as I just get think positive, eat more (lost weight must be because I don't eat ARRGGHHH!!) Go to sleep earlier or anything I say about what I am thinking people try and dismiss.it or say I'm reading too much into it etc etc.  Anyway lovely you have every right to say how you are feeling and what it is doing to you and your family and true friends won't care because they are true people.  I say that like its so easy lol myself I don't say hardly anything as just paranoid they think I'm attention seeking or self diagnosing.... if you ever want to compare moans you have me to talk to xxx have a great weekend Lolly xxx

  • Hi . I felt so sad when I read your post and what you've had to go through before you found yourself here on this forum. You've certainly had a really tough time and have every right to feel hacked off.

    The good thing about being on here is we can  totally understand when you have a down day. My family and friends mostly seem to veer away from talking about my cancer. In fact I told my stepson I'd forgotten to turn my phone back on after my Oncologist Appointment and he didn't even ask how it'd gone. If I talk about it to my hubby he thinks I'm a drama queen. Some friends smother you, others can't talk about it, Especially the one's who haven't had children and are starting or in their menopause.

    We're here for you

    Sending you hugs, Barb xx Hugging


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  • Hi Barb, I'm sorry that your family aren't being supportive it's difficult enough coping with this disease without feeling like a drama queen. You're loved and supported on here by the people who can empathise. I've a a copy of the letter from the consultant to my GP where she says that I'm high risk for surgery and complications like thrombosis and injuries. Just what I needed to hear!

    Take care, Deb