What If and Now

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Hi everyone before my oncologist telephone consultation I always have a period of reflection.... If, I say to myself I hadn't recurred at 6 month being initially diagnosed stage 1a grade 1 I would be discharged this October this being 3 years. Today I had my consultation by telephone (my last physical examination Feb 2020) just about 2 years from recurrence and I have been on 4 monthly check ups(all by phone) I haven't been seeing or feeling symptoms and I still dilate regularly and generally feeling OK. Spoke of the discomfort of relations with hubby and I asked about surgery to ease the vagina situation however she said if I still can have relations and use dialator she would not recommend further surgery. Where am I now... Doctor suggested I go onto 6 monthly telephone check with the offer of an open appointment. I asked if she still considers me low risk, she said yes and at 2 years they feel that I'm am sorted not saying cured but I'm on the right path. I have made the decision to go 6 monthly.. A leap of faith.. I have been getting on with living and staying positive. I was the worse early doors but I am now coming to terms I think the stress and uncertainty made me more ill and I hated the hospital appointments. With butterflies I go forward. Wish you all well Dawn xx

Xxnataliexx over 4 years ago

Hi there wish you well on your journey if you don’t Ming me asking what was your symptoms of reaccurance xxx

Chickplc over 4 years ago in reply to Xxnataliexx

Hi Xxnataliexx I began having a white discharge and then a yellowy greeny discharge, then I had a bleed not spotting. I rang my CN nurse when I began with the yellowy greeny discharge, she thought this was an infection. I went to doctors and they saw a pool of blood at my vagina cuff and took swabs for infection. A few days later I had the bleed I rang the CN nurse again and she wasn't happy and called me in. I had a 5mm nodule at the vagina cuff that came back as grade 1 cancer. This was removed by the biopsy and I had salvage brachytherapy.. Hope this helps take care Dawn xx

Xxnataliexx over 4 years ago in reply to Chickplc

Hi thanks for reply I was stage one grade 2 the thought of it coming back is terrifieing I think it might be because an 3 month post op xxd

Chickplc over 4 years ago in reply to Xxnataliexx

Hi Xxnataliexx i know and to be honest so was I but as time goes by it does get easier. 3 months post op is not long to process what you have faced and gone through. I still have the wobbles but I think even with the recurrence I have survived nearly 3 years and found a level of acceptance and to move on. If you are struggling access counselling talk to your nurse and the ladies here are so supportive. Take care xxx

Xxnataliexx over 4 years ago in reply to Chickplc

Thankyou xx

NannyAnny over 4 years ago

Hi Chickpic,

Good to see you are moving on, and getting on OK. I think it must be hard to put everything behind you. I found it hard when after a year they put me on the patient led scheme. I ring if I have any problems. I haven't had any problems, but it would be nice to be reassured. In fact, although I was supposed to have a telephone call once a year, I never have!! I am coming up to 4 years post op, and know that the further away from the op you are, the less chance of anything, and at 5 years you have the same risk as the rest of the population. So, Time is a great healer!!

All the best, xxxx

Chickplc over 4 years ago in reply to NannyAnny

Hi NannyAnny good to hear from you. Yes it has been a bumpy journey and at times it has been hand wringing but I am here and I hope like you I get to the 4 years and beyond. Xx

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