MRI appointment not within 2 weeks

FormerMember
FormerMember
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I’ve just received a letter for my MRI which was meant to be by 29 March. It’s come for 7April. Rang and left a voicemail with my specialist nurse (after a minor breakdown) as it’s also on a weds which is the day the MDT meet so that would mean no further forward until 14 April at the earliest. I’ve not slept properly since I got diagnosis on Monday, finding this so stressful.  

  • Hi Mrs Weasley

    After she did the hysteroscopy my  consultant made the referral for an MRI scan.  She hoped that I would have had the scan by the time the biopsy results were back so that she could discuss me at the next MDT meeting.  But in spite of her trying to bring it forward my scan was done 3 weeks later and, as in your case, on the same day as that meeting,    She provisionally put me on a theatre list for the next week or so to try and avoid a further delay.    In the event  the details of the scan must have been sent straight through to the meeting because no sooner had I arrived home after the MRI  I had actually had a phone call  confirming the results and giving details of an appointment with my surgeon. So it can be possible to streamline things and perhaps you will be lucky too.

    XXXX

    Anne

    (Class of 2015!)

  • FormerMember
    FormerMember in reply to oldady

    I’ve already got the biopsy results, which is why they’ve said MRI within 2 weeks. Hopefully something can be sorted next week. X

  • Hi Mrs Weasley,

    My consultant said she would try to arrange a CT scan on the same day as an MRI scan, which she did. When I turned up for the CT scan they said I was not on the list. I stood my ground and said the consultant had organized it. Amazingly they 'found ' a slot.

    Also, they gave me a date for the operation. I was rung up 2 weeks earlier to go for a pre-med on a Friday, with the operation on the following Tuesday. I had no decent nightie, no pads, no bag packed. I spent the Friday at the hospital for a pre med and chest xray. When I got home there was a message saying the operation had been cancelled! I rang my CNS who said there had been an emergency, and I had been pushed back!! I was annoyed because I had worked myself up for nothing, but glad that they thought I could wait !!! In the end my result was the same, just an operation.

    Be prepared for anything is my advice, and try not to worry. xxxx  

  • FormerMember
    FormerMember in reply to NannyAnny

    Thanks Nanny Anny my scan result that was outsourced was delayed in reporting. My GP practice is following this up as it is a cancer diagnosis(should have been three days). There’s been some mess ups with other parts( in my bio) and as I really thought last weeks myosure and Mirena was going to fix me, I am extremely anxious and trying to come to terms with it. Xx 

  • Hi . In an ideal world it should be a two week wait pathway but in my experience it's two weeks between anything getting done, I assume due to Covid. When my GP said she's put me on the 2ww on 3rd June 2020 I assumed by 21st June at the latest I'd be seeing the consultant. In reality I didn't see the consultant until 20th August and had my op on 17th September. All the time I put it down to Covid.

    I'd had my CT scan on the 16th August, when I saw the Consultant on the 20th he didn't have the scan results in front of him, sent off an email whilst we talked so my op was decided at the MDT meeting and was booked on the basis of my biopsy & MRI scan (the surgeon who did my hysteroscopy didn't see my 4cm tumour!) My treatments were all done across county  - tests in Lincolnshire and op done in Nottingham.

    So from my initial GP consultation to final Brachytherapy was 5 months, which with Covid, I thought record time.

    Try not to fret too much, once you're in the loop, they seem to move mountains to get us done even to the extent of someone got a phone call to go in very short notice (after the Covid test)

    Big hugs, Barb xx Hugging


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  • FormerMember
    FormerMember

    I had my diagnosis on Tuesday, it really is a harrowing time isn't it, I'm sure the mri scan has to be done within the two weeks, mine is the 30th,  keep ringing your specialist nurse until you get hold of her, Good luck with everything. Xx

  • FormerMember
    FormerMember in reply to FormerMember

    Good news the booking team have just rung. I am going 6pm Weds night. 

  • That's brilliant news.  Wish you all the best 

  • FormerMember
    FormerMember in reply to FormerMember

    That's great news xx