Here we go again

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Hi Lovely ladies,

I had an MRI February which was ‘reassuringly normal’. I am coming up to one since since diagnosis and surgery. I had routine 3 monthly check on Monday and both the consultant and I were rather surprised that there was a growth of some sort at the top of my vagina. Biopsy taken and sent for histology and now the wait for result. I am not a worrier but of course would rather not have to go through this again. I have just told one close friend about this, either way I think that I will not tell others, I am tired of talking about cancer.

Milestones are important to me and I want to acknowledge my one year anniversary from surgery on 30 March, doing this for me. It has been an ‘interesting’ year to say the least with cancer and COVID.

Do any of you do something on the year dates and would you share what you do or have done?

Sending you all love and virtual hugs.

Honey Two hearts

  • Hi Hovehoney,

    I really hope you have not got more problems. 

    I had something on the neck of the cervix when I was in my 20's. They cauterized it. I was so naive I never thought to ask what it was, but cancer was never mentioned. My consultant this time asked me about it, and when I explained she said 'Oh we don't do it like that any more'. I should have asked how they did it now, but didn't!!! She also told me that she liked to keep radiotherapy as a back up plan in case of recurrence. I was Grade 2 stage 1A, and just had the operation. 

    I had my operation 5 days before my birthday, so I guess the celebration is rolled into one. The first year I was more than happy to stay on the settee!!! I always liked going for a pub meal before Covid hit, but last year was out for that.

    All the best. xxxx

  • Hi Honey,

     Sorry to hear that you're having to go through the stress of waiting for results again. I had a similar scare before Xmas ( I'm 18 months post op), which fortunately turned out to be nothing, but the waiting is always horrible, though I can see  that you're a very positive lady and are handling everything well. 

     I'm Brighton based, like you, and think we share the same lovely consultant, so I'm certain  that you're getting the best possible care.......but if you ever feel the need for a supportive chat, just message me.

     

    Gentle hugs,

     

    Gillx

  • I’m two years post surgery and brachytherapy, have had ongoing pelvic pain so have had further scans in April 2019 and 2020 and again in December 2020 but thankfully clear. My consultant said to go back to my GP which I haven’t done yet as tbh I’m sick of tests. Now have problems with my legs so have a lymphoedema clinic appointment next month. One of the doctors at the hospital said the first year is the worst! I sincerely hope you get a good result and that you don’t have too long to wait. Fingers crossed x

  • Hi Hove honey I just wanted to post to give you support at this time.  I know how worrisome this is awaiting test results for a recurrance. Done that and wore the teashirt. As the lovely ladies said there are other reasons for lesions however I want to share that I recurred at 6 months being stage 1a grade 1 and the nodule was at the vagina cuff.  I am now nearing 2 years remission after having salvage brachytherapy.  My fingers are crossed that this is a benign lesion however if a cure is still an option. Good luck virtual hug Dawn x

  • Hi HoveHoney,  The waiting is so hard isn't it but I do hope all is well for you.  Can I ask whether you had any indication of something being wrong, or was it just the physical exam that found it?   I'm asking because all my check ups since my op in January 2020 (Stage 1/Grade 1a) have been by phone and I've had no scans either.  It just makes me a little concerned that there could be something there that hasn't been picked up and my next check up isn't until the summer. Hard not to worry isn't it!

    In terms of marking the anniversary of diagnosis/surgery,  I was diagnosed just before Christmas 2019 and I did find this Christmas hard - as I'd been expecting to mark the one year anniversary with a nice holiday somewhere..... well we all know what happened to that idea thanks to Covid!  In fact I found the whole late December/early January period quite difficult.  It was a hard time for everyone because of restrictions and lockdown but it seemed to bring up some negative memories of a year ago for me.  I was surprised, as I'm normally a pretty upbeat person and it was maybe indicative of me not thoroughly dealing with the experience at the time.  Covid seemed to push everything else into the background in 2020 and I mostly didn't dwell on the cancer but somehow it all came back to me on the anniversary.  Hopefully I'll get that holiday for the second anniversary!

    All the best xx

  • Dear lovely ladies,

    Thank you all for your wonderful support. I joined my local MacMillan virtual support group on Friday. It’s a good place to be able to share the ups and downs and then have a good laugh. 

    RollercosterRide, the only symptom was an increase in vaginal secretions but I had that before my check up back in November. My consultant said that if not spotted eventually I would have had a bleed. 

    I’ll update you all when results come through.

    Best wishes

    Honey Two hearts

  • Glad you found the support group useful. The Horizon Centre is fantastic, isn't it!? Please don't forget that if you want a chat and a moan with someone local whose been on the same cancer

     journey, just message me.  Fingers crossed that you won't have to wait much longer for your results. Gxx

  • Hi Honey, I've been reading your post. Haven't replied before because it sets doubts in my mind. Throughout all of my treatment I felt like I was an observer looking through a window. Until now didn't think I'd need to join any support group but now I feel I do. Perhaps it's since I've become  CC and come across other posts in other cancer groups I'm feeling more vulnerable, plus having just lost my sister-in-law to Covid in January.....

    Let us know how your results go, sending you big hugs, Barb xx Hugging


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