tightness and pressure sort of where pubic hair is (not to be gross)

Hi meb70,

You are not posting too much this is why this forum is here. Did you mention this to any of your Doctors at your appointments ? I personally have not experienced this & I wonder if you have been appointed someone who you can contact with any queries before you are given any further treatment just to put your mind at rest, say perhaps a nurse ? Please try not to google as in my experience it just makes things worse.

What I do know is when I was first Diagnosed I was doing okay for a little while & then I started with different aches & twinges I was convinced that the Cancer was spreading & that Professionals had got it wrong it was far worse than they were telling me. My Brain was in overdrive & I was Hyper sensitive to every little thing I felt in my my body.

I really recommend speaking to a Medical professional & try & think back a little bit in time, did you have this before your Diagnosis ?

I understand totally this is a very stressful time & there is a lot going on right now, & this just adds to it all but it maybe something un-related to the Cancer it may also be nothing to worry about at all. This is the Rollercoaster ride that we all HATE !! So please call someone.

Sending massive hugs right now

Justine 

Hi meb70

Don't apologise, you're not needy, don't google!

Like just65 I did'nt experience anything like you describe but contact one of your specialist nurses - they're all brilliant, wherever they are.

Hugs, Barb xx 

Thanks barb - just seems to get better over here . Dr called and said he say a small area of “angrier” cells grade 2 so I am now in for a CT . This is all just too much to handle . 

Hi Justine - I am so scared dr said they saw a small spot of grade 2 cancer and I just went in for CT . How bad is this?

Hi meb70,

Try not to panic, it's good they have done a CT Scan it gives them more information, you did not say where this spot was did you mean in the Womb or elsewhere ? There are different grades but as far as I know a grade 2 is very treatable so please try not to over think too much (easy to say I know ! ).

If things were worse they would have you in sooner, so a 2-3 week wait for Surgery is about standard & an indication they are on the right path with your treatment. I know this is all very taxing right now but please trust your medical professionals they deal with this all the time & know what they are talking about & the Scan will help them plan your Surgery which usually comes around fairly quickly.

I know you are really Scared right now this is a terrible strain but things will start falling into place & will make sense over the weeks to come & I believe removing the Womb is the best way forward, I found once I had my Surgery done I could relax more ( physically, mentally & emotionally ) it's the waiting that is torture, I hope you have someone to support you & give you hugs at the moment as well. Hang on in there & we are all here for you if you need us.

Love & Hugs

Justine 

Hi meb70

I was originally told mine was stage 1a, grade 1 but turned out to be stage 1b, grade 3 (also was described as angy). It's still very treatable so I'm having 3 high dose brachytherapy sessions starting on 29/10 for 3 weeks.

It's the wait that's so draining. Try not to over think things.

3 weeks post op, I feel fine, been for a 3 mile walk today, drove the car yesterday and am now researching vibrators! Happy days!

Barb xx

omg that made me laugh! thank u barb!

they said" the tumor was largely endometriod carcinoma grade 1 . then they went on to say a small area of greater nuclear enlargement , pleomorphism, and papillary architecture raises concern for a higher grade serous component . this focus is only on initial levels , and not present on deeper sections utilized for immunohiistochemical characterization."  my husband is mad I am looking into it online but this forum is my lifeline right now. they should have the CT tests back today (it is only 530am) and so far surgery s still scheduled for tues.

My other half also moans I'm over the top constantly on the McMillan site but reading the posts on this forum keep me calmer, he's probably miffed that he isn't the centre of my attention!

Don't research any more, our wonderful NHS know what they're doing - I still wish they did the clapping on Thursday night. I'd be out there banging a dustbin lid - if they still had them rather than wheelie bins.

Try and turn off for a bit, not long 'til Tuesday, then you'll be on the way to recovery.

Big hugs, Barb xx 

well I haven't researched anymore but did get a call from the doctor and he said that there was not cancer outside of the uterus so I am assuming that is great news! hopefully the hysterectomy will take it all up and away. these highs and lows are like nothing I have ever experienced ! it is sort of interesting too - I always am shopping online usually - haven't even had the urge ...... would be nice it that will continue when I get healthy!