Hi- I have never posted to a forum before so this feels strange but I feel desperate! I am 49 years old and have been in peri-menopause for a couple years (ii think?) II wish I had kept better track- anyway- I have felt a little pressure on lower abdomen so I went to get an ultrasound. they. said that my endometrial lining was 23 mm and I had a couple cysts on my ovaries. My sister had Endometrial cancer a few years ago (she had hysterectomy and is ok now) -I am so scared that all of the signs are pointing me in the same direction . I take a drug called Spirolactone (because my hair is thinning and dr said it would help) . does anyone have any advice or support they can lend me? I am so scared for biopsy and to hear the word cancer tomorrow.
Hi Meb,
Sorry you find yourself here.
My daughter had a cyst on her ovary in her 20's and had to have the ovary removed. They couldn't do it by keyhole because it was the size of an orange, and I remember her having a lot of problems with the bladder (because the cyst was pressing on it). Years later she had a child with the one ovary!
I had to stop myself giggling during the biopsy. I remembered my other daughter's words when she had a Caesarian. She felt as if someone was rummaging in a hand bag, and that's a true description of my biopsy!! It didn't hurt, just felt weird.
If you do have cancer, you sister is proof that they are very good at sorting things out these days, so take heart from that. Good luck. xxxx
Hi Mel, welcome to the group that no one wants to belong to....but when you're here everyone is kind and helpful! Waiting to find out what's going on is soooo stressful. But I found once you know what you are dealing with you can start to come to terms with it. I also know someone who had ovarian cysts and she went on to have two children. After my diagnosis I just couldn't utter the C word, so I just thought of it as abnormal cells. Try to do something nice today to stop yourself worrying about tomorrow, and let us know how you get on. Wishing you all the best, xx
Hi meb70
Posting to this forum may be the best thing you'll ever do. You'll find love and support from total strangers who will be there for you when you want them. We've all experienced the terror and desperation, I'm also new to this but I'm get the reassurance I need.
If your best friend of 40/50 years hasn't gone through this experience they can't help with the questions you have whereas everyone here has gone through the stages of numbness, disbelief, terror, hysteria and then strangely calmness and acceptance. Put your faith and trust in our NHS, they're brilliant.
Stay strong, big hugs coming your way. Bxx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
"Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett
thank you so much for responding. I have literally typed in "thick" under this group at least 75 times and read over all of the responses multiple times! I feel completely out of. control and dont even know what the results are . It is so scary that I never recorded my periods and dont even know if I am menopausal! I do know in the past couple of months I have been more depressed and hormonal feeling than I ever have been in my whole life. I am very scared for the biopsy today and wish I could be put under , but realize that I prob would have to wait longer for results so I am going to try to get through it - my dr. prescribed valium . I am praying to god that they say it just has ramped up in mm in the past few months and not cancerous yet, but I. am not too hopeful about it . of course I am already planning my hysterectomy and worrying if it spread. it seems as though my whole life has been turned upside down within 4 days . my husband and kids have been awesome -same with my sister and mom, but what a beautiful thing to see complete strangers helping each other out. thank u. for taking your time to write to me! keep u posted
thank u for responding - that is funny "the group no-one wants to belong to" so true . I live in Boston and am happy that there are such good doctors around here so I am trying to focus on that! on these posts I see people with such smaller number mm of uterine lining and I am jealous -wow never thought I would envy a uterine lining of another woman :) focusing on getting through today . thank u again -
update: biopsy done and def hurt but I took a valium beforehand and it helped. the dr. said since I was perimenopausal the lining. was thick but she was reassuring about the ultrasound saying my hormonal fluctuations. in the past few months have built it up quite a bit and that it just wasn't getting the signal to shed. she said she cant rule out cancer completely but she thinks it might be hyperplasma that could be controlled and helped with hormones . The amazing nurse who held my hand made all the difference in the world . I wish my husband could have come in the room with me because since I was a little drugged I dont remember everything she said. the big take away was that it might be more of a hormonal issue than cancer and can be corrected . and if it is cancer I will be upset obvi but a hysterectomy will be ok and I will be alive . I learned a big lesson- keep track. of your periods and bleeding. keep you posted. will get results next week. thank u - women really step up for each other . staying off google and keeping on this!
Hi meb70,
it sounds like your Doctor has indeed informed you of all the possible problems, yes I know cancer hasn’t been ruled out yet and of cause you now have the wait for results, which a i hope its not cancer and b that you don't wait long. I know you said that because of the drugs you can't remember things well, the details etc, i was given a letter with everything that they saw during the biopsy as they do have a really good look around inside when they do this, having it written down does help to understand what they have seen and their thoughts. I was diagnosed with cancer back in 2017 and my only real memory of my biopsy which I had under general anesthetisic due to me being unable to tolerate the pain, I almost felt sorry for the doctor as he was reallly emotional and he looked almost in tears but he was angry too because he had found a suspicious mass and my womb was full of polyps and a mess his words and kept apologising that his colleague had left me waiting so long to actually get the biopsy done in the first place. I was 37 and 2016 july when I first reported irregular bleeding it took many back and twos for the hospital who first said after a scan in August that it was nothing to worry about only a couple of small fibroids i wasn’t convinced so I kept asking, it was the May 2017 and after help from my Gp that I finally got a biopsy although it was an extra couple of weeks to get it by GA. you are totally right about we should all keep a track on our periods and any bleeding thats not right or after menopause, it’s often the case people are embarrassed but it is so important, I keep telling other ladies please keep a check and if in doubt definitely get checked out. Dr Google sadly is often not up to date and you can get sites that are damm right scary and give you all the worse case scenario or out of date information because treatment has come a long way. I had to have a hysterectomy because the consultant from a specialist hospital felt it was the only option as i was staged higher from my mri scan which my hospital kept saying tgey had no appointments but it was lucky i had suffered lots of bad migraines and my Gp wanted a mri done and when i got there the radiologist said oh your red flagged as having cancer and needing a scan we will do it now, a totally different attitude from the person who I tried re book in the scan with who kept saying they couldn’t do it till the end of july and i was getting my surgery on the 10 th july so clearly not helpful at all. When i was diagnosed my consultant told me I could go on holiday as it was already booked and my surgery wouldn’t be done till after then anyway but i came home from holiday early hours Saturday and was in surgery Monday morning so very quick. The positive thing in this whole situation was i was lucky to be low stage stage 1a grade 2 and only had a hysterectomy, which is still major surgery and so cant be dismissed but i was grateful that it has saved my life, saved because I knew something was wrong and kept asking for help.
Fingers really crossed for you for your results, but which ever way we are all hear ready to listen, reassure as best as we can but also share real knowledge and experience from people who have gone through it, going though it, no one ever wants to join this club but they feel better for it.
Sending you a gentle hug.
What is a Community Champion? Womb cancer forum
Call the helpline for free on 08088080000, 8am to 8pm everyday.
“let hope be your lighthouse beckoning you though stormy seas" - Jessica de la Davies
Hi meb70,
This really is an awful, stressful, terrifying time we all understand exactly how you feel. I know several other ladies in this group had thickening of the lining of the Womb & had that treated successfully, I agree Biopsies are nerve wracking but also very necessary to make sure you get the best treatment possible. It is hard to give advice as you have not had result yet other than the Ultrasound, but hopefully the hospital can reassure you a bit more today.
Please pop back & let us know how you got on & keep talking & asking questions it really does help & hopefully when things are a bit clearer we can give you all the support, help & advice that you need.
Sending Love & Hugs
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007