I’ll get by with a little help from my friends

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Hi ladies, I have not been on here for a while but I do think of you all often, it’s funny how our lives  on this forum feels so tight, we all understand fears and support each other in ways that no one else does, It is a little bubble and it feels safe here, the outside world feels scary sometimes especially when you have to put on a brave front to many, while feeling alone (as few people understand the anxiety of waiting for test results, facing surgery etc etc), I am feeling a bit anxious myself at the moment and although I don’t want to make a fuss because it’s nothing to what many of you brave ladies are facing, I just feel like it would be nice to be around people who understand me, basically I was just starting to relax about the whole cancer journey, the fear of recurrence, the fear of tests and results etc, then on Monday just gone I am called into the dr surgery with the same old problem of blood in the urine (microscopic) but no infection, this all started two years ago and I assumed it was caused by my womb cancer, now I’m thinking were they two seperate issues and has this been ongoing for that long, I got my appointment yesterday and was crying through not just worry but the fear of yet more tests and waiting, I just want to be left alone, fed up with prods and pokes, but I know I have no choice , I am to have a kidney scan followed by an abdominal scan, I just want to come on here and hide for a little bit, hope that is ok, big hugs to all you brave and kind ladies on here, I honestly have never known such a lovely caring group of ladies xxx

  • FormerMember
    FormerMember

    Hi Lara Lou, I feel for you as I now have to go through more scans and probable treatment. You get fed up with being prodded and having tests even though you know it's in your best interests. Maybe one day they will find a magic pill that you can take if diagnosed and it all goes away! 

    Stay strong, we're all here for you xx

  • Thank you nanasuki, I remember seeing you on here before, I’m so sorry that you are having to face more test and maybe treatment, it does seem never ending, a pill like the one  you mention would be a godsend in the future, take care my lovely xx

    Don’t ever give up hope, there are earth Angels all around us and Miracles really do happen xx 
  • Hi Lara lou .   I’m so sorry you are facing some new worries. It’s always ok to pop in and hide for a bit if you need too. I truly hope all the tests come back with good results and that your worries prove unfounded. Like you I’m not on site much at the moment but I saw your post and just wanted to send you a gentle, supportive hug and let you know you are in my prayers xx

  • Hi Lara lou,

    It's nice to see you back here, but not (if you see what I mean).

    I think once they've had you in their grip they are going to check everything out. This could be nothing to do with the cancer, but a separate issue. Better to get checked out. Lots of Love xxxxxx

  • Please try not to worry too much yet. I had exactly the same problem as you - microscopic blood in urine for over a year, but no infection. I had had a number of UTIs in the past, which were treated, so assumed this residual microscopic blood  was due to the cancer. I had an MRI  and ultrasound, followed by cystoscopy - all normal. Fortunately, I had a very thorough consultant urologist who looked back over my records. He said that if a UTI is not adequately treated in the first place pockets of bacteria remain in the folds of the bladder lining causing soreness, but only low levels of infection which are not picked up by blood tests. I was put on a 6 month course of prophylactic  antibiotics to allow the bladder to fully heal and it seems to have done the trick. Wait and see what the tests show and if you need more information, cutic.co.uk has lots of useful info. Let me know how you get on. Xxx

    • Hi fairy cake, it’s lovely to hear from you again, thank you for your gentle supportive hug, It’s always appreciated this is what I love about you ladies xx
    Don’t ever give up hope, there are earth Angels all around us and Miracles really do happen xx 
  • Thank you nannyanny, I know you are right hun, I just worry no matter what because it is something, I should be used to it all now but I’m just not a brave person with anything medical lol, hope you are ok xx

    Don’t ever give up hope, there are earth Angels all around us and Miracles really do happen xx 
  • Hello .

    I always say if in doubt ask, nothing wrong with that. Its understandable to be worried when your unsure of what's happening and I really hope you get answers which will help you get it sorted for you. 

    Other then that its lovely to hear from you, you know we will always listen and understand.

    Community Champion badge_GBear Xxxx 

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    “let hope be your lighthouse beckoning you though stormy seas" - Jessica de la Davies

  • Hi jagger, thank you so much for the excellent info, I’m going to look on the site once I have replied to you, but that all makes so much sense what you have said, and to be honest it has made me feel a bit better, hopefully that will be my problem, I really hope so anyway, I have only had about three infections in my life and all were in the last two years, but I know I had one that I never saw the doctor about which obviously cleared but maybe not totally, fingers crossed , thank you for taking the time to share this with me Hun xx

    Don’t ever give up hope, there are earth Angels all around us and Miracles really do happen xx 
  • Gbear as always you are such a support , thank you so much, good to speak to you again xx

    Don’t ever give up hope, there are earth Angels all around us and Miracles really do happen xx