How reliable are CT scans?

  • 16 replies
  • 63 subscribers
  • 8565 views

Dear Ladies 

A conversation with a lovely Lass on here prompted me to ask my CSN a bit more about my recent hysterectomy.

As it was radical I assumed the lymph nodes where removed but it turns out  they weren’t.

It all started when I had a polyp removed which the doctor said looked normal and nothing to worry about... phew! But I was then told it contained a grade 3 aggressive cancer.

Next step CT scan which I was told showed all organs normal so a good chance the cancer was confined to the polyp (CSN nurse comment). Phew again.

The surgeon came to see me on the ward following hysterectomy and said he wasn’t expecting what he found; extensive adhesions, ovaries stuck down, organs squashed and moved around and having to move the bladder around a lot to cut stuff away. 

Anyway back to the lymph nodes: I dug a little deeper yesterday and CSN  tells me he didn’t remove them because he’s not sure if what he found was cancer or endometriosis (I suffered from this for years). 

He took biopsies of the peritoneal and omentum because they looked ‘unusual’ and might revisit the lymph nodes later... more surgery?

If it’s cancer then he feels chemotherapy will deal with it. I vaguely recall the surgeon saying he had left something because I had already been in surgery for 3 hours but was hooked up to a morphine drip so not quite with it. 

I don’t understand how the CT scan could come back clear and not show all these internal anomalies. Also surely a surgeon knows the difference between cancer and Endometriosis?

My next clinic appointment is not until 8th January and I’m having a ‘What If’ Day today!

I suppose it’s highly likely I have Endometriosis and Cancer and he’s hedging his bets.

can anyone shed any light on any of this for me? I know you’re not medics but what do you make of all this?

apologies for the long post and thanks in advance 

  • After a hysteroscopy and biopsy, the cancerous polyp was diagnosed as serous type 3. After my hysterectomy the histopathology was carried out by their top professor and it was reclassified as clear cell type 3. 

  • OMG LC

    Thats so awful. Thank you so much for being thoughtful and kind enough to pass the advice on re PET scan.

    what a woman xxxx

     
  • Hi Christmas,

    I didn't answer straight away because I was thinking about my reply and if it was relevant!! Although my scans picked up potential problems, It didn't seem clear which were cancerous, if any. Although they told me the throat problem was not cancer, I had no biopsy there. I guess they must know what they are looking for.

    Maybe I am lucky with my hospital. They were very good when my husband had throat cancer, tried all sorts, and I trust them completely. I think my treatment was just as good although not as complicated. xxxx

  • Hi Nightingale 

    I won’t insult you by asking how you feel about that. At the moment I only know I have grade 3 so am maybe about to climb into that boat with you!

    Best wishes xxxx

     
  • Hi Nanny

    Relevant or not it’s always nice to hear from you xx

    I read your profile and I’m really pleased you are doing so well after all the worry you must have gone through with cancer in the family and yourself.

    I am feeling a bit unsure of things at the moment and am mostly able to stay positive. So apologies if I bring anyone down with my current negativity.

    Like a bouncing ball I'll be back up again tomorrow. Think I need a glass of vino and some Ruanda dancing!

    support from ladies on this forum is invaluable and I have 3 crazy sisters rallying me round too....can’t be bad

    thank you xxx

     
  • Hi there Christmas2019 

    I have been reading some old posts from Serous ladies and came across your post, if you read my bio your story is very similar to mine, as it's been three years or so since your treatment I just wanted to check in and see how you are doing and hope you are doing well. X

    Madesp