Well that didn't work out !

FormerMember
FormerMember
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So geared myself up mentally for my first new round of 6 more blessed chemo, guess what?  I had another anaphylatic shock. Exactly one year to the day when I had one to the Paclitaxol.  Back in on Friday and just going to have the carbo platin on its own, see if that can shrink this 'bigger' critter in my lung. It was nice to have a lie down for a couple of hours though, woken up with very red face today ! The joys 

LC

XX

  • So sorry that happened to you again Little Critter, how frustrating it must be for you having got yourself all ready for it.  

    Hugs, Lesley xx

  • Oh LC, what a day you must have had, I hope you will be spoiled and doing things you enjoy today and tomorrow.

    lots of love 

    xxx

  • Hello LC

    That sounds horrific even though you bravely make light of it. I hope you’re feeling ok today?

    i don’t pretend to know exactly what you’re talking about as I have yet to experience the joys and horror of chemotherapy. I am told it will be arranged in six weeks time though, when I will no doubt rely on advice from seasoned Amazons like yourself.

    Your reaction is obviously severe - are the alternatives just as good?

    best wishes to you - I wish there was an app for it 

     
  • FormerMember
    FormerMember in reply to Christmas2019

    Hi there Christmas, unfortunately I have a very low tolerance to a lot of meds.  But because I knew what to look out for this time I was dealt with very quickly. They just had to try another drug, I'm not sure how many people it happens to? The carboplatin I've had earlier in the year and tolerated that well,  so let's just hope that I'm OK  with it tomorrow,  they have loaded me with steroids etc just in case. Don't look too far ahead to your treatment, just enjoy resting and recovering from your op ! Take care.

    LC

    Xx

  • Hi LC

    I’m taking it easy today : still lolling in bed snug as a bug listening to the sound of hubby hoovering downstairs (hope he remembers to empty it)!

    He brought me Xmas crumpets earlier (star shaped) and I’ve received get well cards, early Xmas presents (bit of a worry) and a hilarious video from a group of crazy ladies (I’m a Soroptimist) all dressed up in ABBA costumes singing to me ‘we wish you a merry xmas’. I was quite down yesterday having to miss our annual get together.

    I know I will be cheered up by that video in the days to come and recommend asking friends and family to make one for you.

    After all laughter can be the best medicine xxx

     
  • FormerMember
    FormerMember

    Hi LC,

    Hope you're feeling ok now. Must have been awful to go through that again. If it's any comfort, my Oncologist told me that Paclitaxol only does about 25/30% of the the work Carboplatin is the main one.

    I've had my schedule come through and I have my first session on 18 December. Not looking forward to it but it has to be done. Hopefully I'll be ok. 

    Good luck for Friday.

    Take Care

    Sue x

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Sue/Bondgirl, what regime will you be on ? Just make sure you drink plenty of water, during and after your treatment, get it out of the body asap ! IF you were to have a reaction may I reassure you that hey act very quickly, don't wish to frighten anyone but I always think it is best to be aware that it can happen. 

    I will keep you posted about tomorrow ! 

    Love to all, and thank you for taking the time to reply.

    LC

    XX

  • FormerMember
    FormerMember in reply to FormerMember

    Hi LC,

    Will have 6 sessions of Carboplatin/Caelyx (Liposomal doxorubicin). I know I can handle the Carbo from last time but don't know about the other. Time will tell.

    Sue x

  • Hello , and

    Just sending you all gentle hugs as you are all having or facing the prospect of chemo. It is daunting as some of you know. I’d describe it as tough but doable. Keep hydrated, take gentle walks when you feel up to it, ginger is good for nausea and pineapple can help take any “tinny” taste away. Definitely use hand gel  and try to keep clear of infection - in the low immunity days I used to pick my times to go in the local shops when there were fewest people around (my oncologist said he’d rather I went out but be sensible about it than have to treat me for depression or anxiety brought about by isolation) It’s definitely a case of finding a balance and pacing yourselves. I hope treatment goes well for you all x

  • FormerMember
    FormerMember in reply to Fairycake

    Thank you Fairycake,

    A hug is much needed at a time like this. I feel very vulnerable today. I know the chemo is doable, in the right frame of mind, I'm just thinking I could have had a better Christmas present. Still, feeling sorry for myself is not what I'm about and I will pull myself together. Feeling pants at the moment with bowel and abdominal pain and annoyed that my GP won't do anything. "See what your Oncologist says" that's all they ever say, batting it off. Drinking peppermint tea as I type hoping it helps.

    Sorry to whinge.

    Sue x