Reoccurring uterine cancer

FormerMember
FormerMember
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In 2009 I was diagnosed with uterine cancer and had a hysterectomy and radiation. I thought it was gone until late 2018 when it popped up in my lungs. Six rounds of chemo and was told that I had no evidence of disease left. In July 2019 two tumors popped up. I am now on tamoxifen which I take each day. I am very confused About my prognosis and I feel really well every day except for a bit of pain in my legs and some neuropathy in my feet. Otherwise I seem to be as well as everyone around me. I really want to know if I have weeks or months or years left so I can make some plans end stop working. Does anyone know what I should expect at this point?

  • Hey there Rose, 

    I'm afraid that's not something anyone here can answer for you. Even your doctors would be hard pushed to answer it with how treatments are progressing. 

    Have any of your doctors told you that you're incurable or terminal? 

    I think the best thing to do would be to get in touch with your nurse or consultant next week, and see if you can have a chat with them about this and see what they say. 

    Lass

    Xx

    I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.

  • Hi Roseash, I also have reoccurrant endometrial cancer, 2016 had radical hysterectomy, 2018 reoccurrence in my vagina, radiotherapy and brachytherapy, now they are looking at a liver tumour, I'm awaiting yet another mri scan and I also have concerns about one of my breasts although that is yet to be investigated  because I'm scared to go to the gp (I will very soon I promise). Noone can truly tell you what your prognosis is, I've met ladies who have lived with ovarian cancer and its secondarys for 20 years, I've met ladies who are also classed as stage 4 who have weeks. For me I am currently free of disease, technically, but I am far from well, I have many side effects and other concerns but I figure life is so short. You can't put a time on time so to speak, until then you need to just enjoy each day my lovely till someone tells you otherwise xxx

    Nic xxx

    There's a Silver lining in the clouds of doubt
    Lean into the storm with
    Open arms and let them know
    You didn't come this far to just let go                                    Your spark can start a fire. ..