Worried sick 19 mm thickness of the endometrial lining

Heya Ladybug,

First off, deep breaths.

Thickening of the lining is quite common in women, and yours isn't that thick as it's only 4mm bigger than it should be. The reason for the speed is that any symptom of cancer, needs to be treated under the 2 week rule set out by the NHS. So even if it's unlikely to be cancer, they still see you quickly because having something lingering over you for months is recognised as a threat to mental health. So better to get it seen and answers given so people know what they are dealing with.

So the next step will probably be to give you a hysteroscopy which is where they have a look inside of your womb and take some samples of the lining to see what's going on. So that's another reason why they see you quickly, because appointments are few and far between, and it takes time for labs to investigate cell samples, then for another appointment for results. So while it feels like things are happening quickly, you're looking at probably at least a month or two from now until you actually get any definitive answers. More often than not, it's just a case of hyperplasia which is easily treated with the Mirena Coil and nothing else. Endometrial cancer is actually very rare in younger women, and most investigations find that it's something else.

So at the moment, it's definitely not worth getting too stressed out over, and we always recommend all sorts of distraction techniques to help you get through the waiting for appointments and results. So that cupboard under the stairs where everything gets dumped? Empty it out and sort it all out. The garden looking a bit untidy and sad? Time to get the gloves out and sort it out before winter fully hits. That Christmas Market on in town? Grab some friends and go have some mulled wine and a nutella crepe. The merry-go-round and big wheel? Get the kids and go for a ride, and a Nutella crepe! lol Etc Etc.

Whatever happens, you've got this!

Lass

xx

Hi

Thank you so much for your reply means alot and had made me feel so much more better your right I need to keep myself occupied and enjoy the things I like doing ...I'm in such a state I dont know why I guess it's just the not knowing ...they said thickening is only on one side maybe polyps but could not see if there were 100 % I'm also urinating loads with a heavy feeling in my stomach so I'm overthinking I guess..worse thing was doctor Google I've already signed my death sentence . I've scared myself to death think that was the worse thing doing that ...my apt is next week Friday so I will see whee I go from there...thankyou so much for taking the time to reply back to my message.  

I'm currently laying in bed feeling sorry for myself I'm going to get myself up and get out no good me moping around. 

Xx

Hi Miss ladybird,

Lass has given you fantastic advice already, I just wanted to add that I had womb cancer and it was treated with a hysterectomy only (that's the case for a lot of women on the site). Lass (and others) are being treated with hormone therapy, womb cancer is really treatable when caught early, try and avoid google, it sends you up the pole.

Whatever the outcome (the stats say that 90% of womb biopsies are all clear, and lots of people pass through the group and get the all clear) we are here to wait with you, feel free to share any worries, ask questions or have a rant if it all gets too much.

lots of love 

xxx

Yeh, you see what I mean? It sounds like it's moving quickly compared to what you know of the NHS normally, but think of the tizz you're in and imagine having to wait months and a year for tests and results. So rather than worrying about the speed, flip the perspective and be thankful for it. A lot of everything in life is looking for the positives, especially during medical tests and issues. 

As Arla says, Google is not your friend right now. It's great for lots of things, but looking up symptoms you're having is not a good idea. Ever. So put yourself on a Google symptom search ban! 

And getting out and about is a good plan. I think a couple of daytrips out over the weekend are called for. Fresh air, a brisk walk, laughing with the kids, and a few treats will blow away the negativity and you can start the week invigorated and ready to face anything! 

Lass

Xx

Thankyou all for taking the time out to reply back to me what a lovely support group this is .

Will keep you all updated fingers crossed

xxx

Hi ladies just a update I had my hysterscopy think that's how you spell it last Friday they found I had a sessile polyp around 1.5cms in size he said all looked good but done a thorough biopsy of my lining .waiting on biopsy results and to see where we go from there I'm worried sick havent been eating again as I've been googling again and it saids polyps can be precancerous specially the sessile ones and also are more aggressive if found to be cancerous...I'm so scared anyone been through similar with a polyp.

Thankyou for your time .

Carla

Hi I understand your worry. I had a thickened lining and when they did hysteroscopy they told me they also found a large polyp and removed it. I was initially told my results were complex hyperplasia with atypia and that I needed a hysterectomy. 2 days later they called me back and said after a multi disciplinary team meeting they determined that it was actually endometrial cancer. I was of course devastated but my treatment was still hysterectomy ... I was bumped up the list as urgent. That was in July. After the hysterectomy they tested the womb and they were right it was cancer 1A and I needed no other treatment. I am now fully recovered and cancer free. I remember the early days when I was panicking about diagnosis and dreading it being cancer. Obviously there is nothing to suggest your case is the same as mine because in the vast majority of cases the cause isn’t cancer. 

I found the most difficult time was the waiting for diagnosis...it’s a really scary time and I felt like I was in a constant fog. I’m out the other side and doing well now. Please don’t be worried by the fact that my circumstances meant I had cancer as we’re all different and google can’t diagnose you. Take care and keep in touch xxx Stephy xx

I had the same operation in 2013. Needed three blood transfusions. My late boyfriend was alive then, so supportive. And it happened on his birthday! My only regret was I didn’t realise that I would have liked to have a child. But life comes first. 

Hi stephy thankyou for your reply glad you are now chance free that's wonderful news thank you for sharing your experience with me . It's the waiting for the biopsy results is the worse part I've never been so scared in all my life I just keep thinking the worse sorry to sound negative . 

I will keep you updated on my results. 

Carla xxx

Cancer free * sorry spelling error