Tingly feet anyone?

Dear nightingale, it’s possible that it is peripheral neuropathy, when I was having chemotherapy it was a problem I had, after treatment stopped it disappeared, I found cushion insoles in my shoes helped somewhat and keeping my feet warm at all times, it seems to be a hard nut to crack but anything that can give you some relief is worth trying. 

Hi Nightingale,

Sorry to hear that you are having this problem. It does sound like peripheral neuropathy, due to chemo.

I finished my chemo almost 4 years ago now, and was told initially that it may disappear eventually,but I have to say that mine has not although it does not bother me to much except for the odd occasion when in bed. I sometimes get a burning feeling on my toes aswell,but I have found wearing socks does seem to help for some reason.

I hope that your problem clears up as it obviously does in some patients.

Take care,,

Georgette x

Heya Nightingale,

Mine turned out to be plantar faciopathy. So some stretches were prescribed and things improved.

But def a trip to the GP I think to get them to pick a reason for it so you can try and improve things.

Good luck!

Lass

xx

Haven't had any adjuvant treatment yet. I do suffer from poor circulation in my feet and one explanation could be that my toes went to sleep during the course of a long operation and of course did not wake up until much later. I was in the Recovery Ward for a long time while they waited for my BP to return to normal. Still would have thought it would be better by now as the op was a week ago. 

Hey nightingale,

like lass I'd recommend a chat with your gp. I just wanted to add that I was given an exercise book post op and one thing it recommended was moving my ankles at regular intervals to help circulation. I found a similar booklet online that I've linked below, but it might be best to speak to your gp or CNS before you exercise.

https://www.thh.nhs.uk/documents/_Patients/PatientLeaflets/womens/PIID169-Physio_GynaeOps_Jan12.pdf 

lots of love

xxx

Thanks for this.  The care was exceptional in hospital, but discharge, advice on recovery, exercise etc, follow-up etc, more or less non existant. Various people came round on 2nd day for about 1 minute, ticked me as seen and scurried off. I was told to expect to stay 3rd night by doctor but when my son turned up to see me towards end of visiting that evening, I was pretty much chucked out on the pavement.  Had to sign up for a uber account before I could arrange for a car to get me home! (Not my local. Hospital and an hour from home.) 

Arla. I only wish it was possible to chat to my gp. The appointments are all three weeks out and  since this doctors tax issue, the senior partners have all cut back their hours and you get to see a random locum. Twice recently when trying to get diagnosed,by my GP (my cancer possibility was spotted by an A&E doctor and missed by my practice) I was seen by unsympathetic young female locum. 

it could be nerve damage. i didnt have that after hysterectomy but when i had a skin graft on my leg and some lymph nodes removed for melanoma i had that for several weeks on op side.

Hi Nightingale 19,

sorry to add to this post when I know nothing about tingly feet but I nearly swore out loud when I read about your experience with your GP surgery!!! That's bleeping awful

I've never been much of a ditherer and am renowned for being blunt so sorry for asking...

What kind of support are you getting? What I mean to say is... are you in contact with a Macmillan Nurse/Nurses or local support groups?

i think once you are under the jurisdiction of the hospital any post op problems are their responsibility.  you should have been given a cns to answer any queries if you feel it cant wait until your post op checkup.