I raised this before without a response. I am having a bit of an issue with tingly feet. (feels like pins and needles). I have looked it up and there are various possible explanations. Anyone else had this and able to share the cause?
Tracey B. I am in touch with the Macmillan nurses at the hospital where I had my op but they operate as a pool over 5 hospitals in a group and you cannot always reach the same one. I do not have one assigned to me personally at present. And the hospital where I had the op is not local. I do not really have a personal team. I have seen 2 different consultants and a third one did the op. Hopefully that may all change when I go for my follow up to the operation next week.
Aah I see where you're coming from... My Pool of Mac-Nurses is 3 and I know what you mean about not always being able to speak to the same one.. I've spoken to all 3 of them, it gets a bit confusing as one of them is called Tracey too
I've seen 3 Gynacologists, visited 3 hospitals and a clinic and will have visited 4 hospitals when I go for another appointment on Monday.. We'd make really good mystery shoppers wouldn't we!
Hi Nightingale, sorry to hear it is so difficult to get a GP appointment. Is there a NHS Walk-In centre that you can get to? I went to one when I could not get a GP appointment. There was a GP available there and in fact that was who got the ball rolling for my initial referral to hospital.
Hi nightingale19 It could be, as you say, that some nerves went to sleep during the op and it's taking them a while to "wake up" again. Definitely one to talk through with either your GP or a CNS or both. I had tingly feet and fingers (peripheral neuropathy ) during chemo and whilst it seems to have cleared up in my hands, I still have some slight side effects in my toes. My feet nearly always feel cold unless it's very high temperatures, they sometimes feel fuzzy too. I was to,d if the peripheral neuropathy hadn't cleared up within 6 months or so of chemo finishing, however it presented at that stage would then be permanent. Nerve issues after ops or even falls aren't uncommon and they do take time to heal - I know of an elderly man who fell and was on the floor for several hours before he was found. During that time he was laid awkwardly on his hand and nearly 2 weeks later he still hasn't got all the feeling back in the two middle fingers of that hand. Might be worth keeping a note of how your feet feel and if anything affects the feeling (e.g. Whether they feel worse if you're hot or cold, etc) whilst you're waiting for an appointment. Hope it clears up soon x
I have exactly what Fairycake has described with peripheral neuropathy following my chemo, hands pretty much better, feet still tingly and feel icy cold even though they aren't, but keeping them warm with socks helps. It's ok to cope with even if it stays.
Yours may be the position you were in for your op? I wake up often with carpal tunnel zone tingling in my hand, which goes after I shake and wiggle my fingers for a while, so that will be the position I slept in. It only happens when I have just woken up.
I had a numb belly for about 18 months after a fibroid op in my 20s, and had written off getting the feeling back, but then it just started recovering, and after a few more months was back to normal.
Hi there not sure if it will help but my dad has been having chemo and suffers with what we call ‘chemo toe’ the tingling sensation in his feet. We used tiger balm one night as it was keeping him awake and he swears by it now! Says it takes away the sensation or at least reduces it when it’s bad. May be worth a try
