I have already posted here that my diagnosis last week with level 3 endometrial cancer knocked me for six.
I had been diagnosed with 2 uterine polyps in the summer and had them removed in Day Surgery two weeks ago. (Had to get my blood pressure down first). And it seems everyone involved including the sinologer who did the TVUS and Gynae registrar who reviewed it, did not see any sign of tumors and thought it would be a routine removal. Even when I had my day surgery, the surgeon told me it had been successful. Then I got called in urgently to Gynae on Friday, to see a rather harassed consultant, who told me they had not in fact removed all the tumour as it was firmly attached to my womb and a biopsy of it had found level 3 cancerous cells.
He said was not be too concerned about the level as almost all uterine cancer is caught early and is slow growing. He did not say what kind of cancer it was - and I find it very frustrating that no one has at any stage showed me any scans. The consultant said he was referring me to the specialist cancer unit in another hospital up the road where they have a full range of facilities and I should have hysterectomy with laparoscopic surgery. He said all being well that I would lonly need a hysterectomy and I would be back home in 48 hours.( Later after he left the nurse said it is in fact a part laparoscopic part vaginal hysterectomy they do there..) He said I would be up and about as normal by the end of November.
My ssonwho was with me, asked if I would need further treatment like radition or chemo and he rather dodged the question and said it would depend on the team. But from accounts here it looks like I will as it is level 3 cancer. That seems to make it more serious despite what the consultant said
The thing is I have had a series of bladder and vaginal bleeding issues since early summer which were attributed to a trapped kidney stone. The possibility I might have womb never emerged. Now I do not know what to think. What if it was all cancer related all a!ong? Maybe it is further advanced than they think?. After all I am in the 5% whose polyp turns out to be cancerous. And I was diagnosed with 2 large ones by the TVUS.
On top of that I looked up the hospital I am being referred to and ,despite the consultant's assurances, it is in a group of seven which is one of the lowest performing in the country for cancer treatment. My friend went in to another one in the same group earlier this year, with a brain tumour and picked up e coli while waiting for radiation therapy and was then discharged without further treatment or any trearment plan. He lasted 6 weeks after diagnosis. None of that has made me feel any better about the future. I have two adorable grand children and this time last week I was expecting to see them grow up. Now I just don't know. I can't go and talk to my GP all appointments are solidly booked weeks in advance .
The only staws I am c!utching at present are that the polyp which turned out to be cancerous was the only thing the sonogapher found after a a long probe in my TVUS and when they were investigating me for kidney stones in the summer I had a CT scan of my kidneys urether and bladder which was c!ear. So I am hoping that means the cancer has not spread that far but with my luck at present who knows?. I mentioned the CT scan to the consultant and he dismissed it as irrelevant saying it only covered the stomach.
So I am feeling very low about what comes next. This time last week I was feeling optimistic about the future. Now,?
Has anyone been diagnosed with cancer level 3 and stage 2 and made a good recovery? I am starting to feel the odds are running against me.i should like to read some positive outcomes.
T
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