Post Op results - Dodgy gene?

Hi Smashy,

I don't know what your test results mean. I do know that these days they try to pre- empt problems by gene testing, which is good, I think.

When my youngest daughter was 21 she had a leg thrombosis brought on by being on the pill. They immediately tested her for a gene that predisposes you to thrombosis. She has it, and her sister was advised to be tested, She has it, too. That means I or husband, or both are the carriers!! I told my consultant before my operation and had blood tests taken. I think the results were lost and as a result I had blood thinning injections for 6 weeks as a precaution instead of 4 weeks.

My girls now know that if they are pregnant or have a long flight they have to inject themselves before they go. Better to be safe than sorry!

I'm sure they will keep a good eye on you and them (if necessary). xxxxxx 

Mismatch repair deficiency. It's a gene that predisposes you to certain types of cancer . Like lynch syndrome it can be passed down the generations so your children may well be invited for testing. I'm glad to hear that your cancer is contained and you probably will not need further treatment but I'm sorry that they have discovered you have this. It is a blessing in a way though as nannyAnny says because at least your children will be aware of this and be more vigilant. No doubt you have already told your daughters the symptoms of womb cancer that you experienced to make them aware of it like I have mine and also female members of the family and at work. There doesn't seem to be as much information out there as a lot of focus seems to be given to breast cancer which is more common. Indeed I have had some people say to me that they were unaware of it completely so I think we need to speak out if we can to make people aware of it. They will probably tell you more and you will get information at your follow up appointment. In the meantime you take care and try and keep positive..all these advances are for our own good in the end even though we worry about them. Big hugs smash and I'm keeping you in my prayers. Love lamb.

Hi,

Out of my immediate family, my husband had throat cancer 13 years ago, my younger daughter had breast cancer 6 years ago, I had womb cancer 2 years ago, and in her 20's my eldest daughter had an ovarian cyst removed which was cancerous in the middle!!!! None of this seems to be connected - just life!!! What I am trying to say is - your dodgy gene might not rear its head, but your children are forewarned!!! I think that's good.

And I quite agree with Little Lamb. I told both my girls to put it on Facebook, and to spread the word about womb cancer. My consultant thought it a good idea and said there wasn't enough publicity about it. She also added that she often had to pick up the pieces when symptoms had been ignored too long. I can understand how that happens as my symptoms were not bad and I could easily have ignored them. It was only because of a past history of miscarriages that I knew bleeding was wrong and wasted no time going to the doctor.xxxxx

Thank you Lamb!

I've read up a bit on MMR and to be honest I am non the wiser on what it really means for me, (the Macmillan nurse said it was 'life changing news,..) I suppose my Cancer journey will just be ongoing rather than drawing a line under it.

I will have a few months now before the results of the screening, as the ball won't start rolling for a few weeks so for now I guess it is best to concentrate on feeling better after the surgery and try not to worry about what may or may not ever happen!

Thank you xxx

Hi NannyAnny

Yes, I was pretty hot on my symptoms as the constant bleeding was so unusual for me, considering I thought my periods were on their way out and thankfully the GP was just as on it!

Yes cancer is an indiscriminate beast and since my diagnosis I have been searching for reasons (I am very tall, and quite heavy although  fit and slim) and was thinking maybe to was weight based because I know that can be one of the causes of this type of cancer.

I suppose I have my answer if it's down to a 'genetic spelling mistake' as they put it, and nothing I could have done would have avoided it or caused it!

Just got to concentrate on the positives for now, that this cancer has been removed and at present I am cancer free.

thank you xx