Hello Ladies,
As I posted just a few weeks ago, my last 3 month scan revealed something in my lung that wasn't there in my previous one. It measured 2 mm x 5 mm and I was told it was too small to biopsy. As well, I was told the usual 'not to worry'. Well, I've been worried sick ever since that day. I previously had two metastatic nodules removed from my lungs as a result of endometrial cancer. My scans have been okay for a couple of years now. Today, this has all gotten to me. Why have they not suggested a PET scan? Why can they not identify this in some fashion? Just waiting is hell.
It's hit me badly today, since yesterday, I attended a funeral for my aunt. My other auntie had died of breast cancer 2 years ago and this was her sister. We were close. The day was long and difficult. Yet, it caused me to begin thinking. My auntie didn't look like my auntie at all yesterday. Frankly, it was unspeakably horrible. Yet, it reminded me that I should make my funeral arrangements very clear to my niece. I do not want embalming and wish a same day, few family funeral. To understand my thoughts, I have been estranged from my daughter (who has kept me from seeing my very loved grandchildren) for 7 years. I, therefore, do not wish her or any other family members except those whom I've designated to even know of my death.
I'm really writing this since I have done nothing this summer except attend funerals. I had some deeply disturbing news from a client just a few hours ago. I live in a perpetual state of fear of this monstrous cancer. My husband is supportive in many ways, however, not at all, emotionally.
I've come to wonder if living in 3 month increments is even worth it. Now, it seems October is terrifying me. I expect bad news since it's pretty much all I've had. I really don't know how much longer I can take living as a woman with cancer and focusing only on how the end will be. The treatment (letrozole) could be responsible for many of my feelings physically and mentally. I just don't know and cannot seem to get an answer from doctors that satisfies me.
The day of the diagnosis is the day that I really lost everything … my hopes, dreams, and future. So, is this nonsense and facing likely worse to come even blummin well worth it?
I know I sound super grim yet thank you for listening to me. It's a bad, bad day and I so needed someone to listen to something that doesn't even sound sensible or rational.
Jan xx
Hi Ms Muggle,
So sorry you are feeling like this. I personally think funerals are very depressing, and the older I get the more I can attend!! I have decided I'm going to be selective and only attend family ones or very dear friends. I do not want to spend my days attending such events!!!
I also think a diagnosis of cancer changes everyone. No longer can you be sure of your body. You no longer feel invincible. I think you just have to make the most of what you have, and who you have become. You may have to change your dreams, but is that necessarily bad?
Love and hugs xxxxxx
Hello Mrs Muggle,
You have had a rough time, no wonder you are feeling low. It might help to contact your consultant or his secretary to explain how worried you are and ask them to talk you through their current plan for you and why they feel it's the best . It might reassure you that you can leave it with them.
I have been having a couple of days fretting about a symptom I haven't had before ( and Googling it- never the way to cheer yourself up), so I know what you mean about the worry you have after a cancer diagnosis.
I do think we go through these patches, and it's a self defence survival mechanism to try to roll with them, make a cocoon around the feeling and then push it behind us and go about getting the best from each day. Like Scarlett O'Hara said ' I'll think about that tomorrow ' and keep putting it off. Trying to do that myself currently.
Sending hugs x
Hi Jan, ( @Ms Muggle)
It sounds like you re going through an incredibly hard time just now and I really feel for you. I'm so sorry to read about your aunt. . Losing someone we are close to is exceptionally hard. Dealing with this on top of everything else that's going on healthwise must be very disheartening for you. I attended 5 funerals in the space of 10 days last year, two off which were for people who'd had cancer - it was a grim time and I can understand something of the despair that you feel. Gentle hugs are winging their way through the ether to you - words are inadequate at times like this. Please know that you are loved and cared for here. Remembering you in my prayers x
Hello Mrs. Woodentop,
If I could just leave it with someone else, I would be much better. The way my consultant works is through a general line whereby you speak with a nurse. It's fine to refill a script, however, for anything else, it's rather useless. Their treatment plan is to wait and watch carefully. I'm told it's too small to even biopsy or pick up on a PET scan. Of course, because I believe nothing is impossible, that just isn't satisfactory. I really wonder if they understand the torture of simply waiting.
Aaah, Dr. Google and I are quite close and it's a huge, horrible habit. I've had pretty much every disease and disorder known to man and a few more.
I agree. We do go through these patches. My manner of dealing with them is to attempt to put them in a little box, make certain the lid is on tightly, and file it away in my mind. Unfortunately, this technique isn't as effective as usual. It's likely that human nature is to fear the unknown. I feel so weary of living this life in a state of perpetual terror.
Good luck to you in your efforts to keep your thoughts at bay.
Thank you so much.
Jan xx
Hi Fairycake,
I admit, few times have I felt quite this despondent. Thank you. My aunt was a wonderful woman and I just found the funeral horrific. It is hard losing someone we love and fighting our own battles at the same time feels almost impossible. You know, Fairycake, I simply can't imagine you having to attend 5 funerals in 10 days for people who'd had cancer. I so admire your strength. I honestly don't think many of us could manage it and bravo that you did.
Thank you for the hugs and telling me that I am loved and cared for right here. It honestly dispels the isolation I feel.
God bless.
Jan xx
Hey Ms Muggle, you know we all have bad days, and its OK not to be OK. I am sorry to hear about the funerals all summer sounds horrendous indeed. The unknown is scary and frustrating too especially when you are waiting on answers. Not sure about the drug but really honestly everything you have been though is so bound to make you feel down and upset and I want to send some gentle hugs to you. Plus I kinda understand the frustration and waiting on results from tests I am waiting on some results and today been reffered back to the bowel speacialist under the two week rule after a significant bleed from my back passage, its probably hermeroids future up that have been irritated but they said its better to rule out possible reaccurrance in my bowel or something of that nature. The know the most annoying thing is when people say oh you look so well, I think if they understood the trauma that cancer patients go though maybe they would be more careful. But resilience is such an important thing thing which many in brace but even with that we can have a bad day.
Sending you some gentle hugs
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