Scared awaiting diagnosis

What were your symptoms?

i am awaiting an appointment 

If initially started with problems with my bladder which they thought could just be over sensitive then they thought endometriosis of bladder as had it before. Then I started having bleeding which was out of character as have a mirena coil and normally never bleed and more pain. I am extremely bloated and told I feel 18 month pregnant. Yesterday they said the mass is filling my womb and right on top of the bladder. Also lack of appetite and lots of watery discharge 

Hi embp,

im 38 now and was diagnosed in June 2017 when I was 35, I just needed surgery to cure me, it's often all that's needed when womb cancer is caught early. 

So, dealing with waiting, just keep as busy as you can doing all the things you enjoy, if you struggle to sleep try a relaxation video with deep breathing, you can get them on you tube. 

And keep chatting with us, the more I read on this site the better I felt, I didn't actually find it until after my operation but wish I'd seen it sooner. 

Have you had a hysteroscopy and biopsy? That's usually when you would get a diagnosis, you have the biopsy then a few weeks for results, as far as I'm aware an MRI can't diagnose cancer, but I'm not a medic. I had an MRI scan after my diagnosis to allow the surgeon to plan my treatment. 

The women in the group have a range of diagnosis and experiences and are always happy to share.

lots of love 

xxx

Reading this post I see why they might not do a biopsy if your womb is full, hopefully you will get some answers on the 12th, you must be so uncomfortable 

xx

The radiologist yesterday said they would be able to tell from the MRI. I think that is because a lot of the other things it could have been when I saw the consultant on Monday have now been ruled out. He did also take some samples so guess they will be tested. As far as they have told me so far we will know on 12th what we are dealing with. 

Thanks for the tips. You’re right the sleeping is hardest because you have to stop being busy at some point to sleep and that’s when my mind goes into overdrive 

Very uncomfortable  They were also meant to do an internal scan but said there was no point because they wouldn’t be able to see anything as the mass is as big as my womb

Hi, I'm sorry for the reasons you're here, but so glad you managed to find us. There's no doubt the waiting is really tough, I think most of us actually feel better once we have a diagnosis and if necessary a treatment plan, even if the news is that we have cancer. The ladies here are all very understanding and no question is too "silly" to ask. Most of us aren't medics so we can't give that sort of advice, but we do all know how you're feeling and it's amazing how much a virtual hand hold or a hug can help. We usually say to everyone, and especially during the waiting stage, try and stay away from Google.....so much info out there is out of date or even just plain wrong, it's much better to try and distract yourself with things you enjoy doing and then ask all the questions when you see your specialist or allocated nurse. It's worth remembering too that cancer these days is really many different illnesses with different progression patterns and treatments and womb cancer is typically one of the most successfully treatable. Sending you lots of virtual hugs xx.

I have had two times tiny amounts of blood upon wiping after sex

told nurse when doing smear she wasn’t at all concerned and as nurse couldn’t find cervix she got in gp who wasn’t concerned either and said all looked normal

smear normal

swabs normal and next gp examined me and said all good but I am a worrier hence referral as post menopause age 48

i just want piece of mind 

I know it's big so that will be a worry, but it's a good thing if it's contained within the womb, even if it's not contained there are always options so try and not let your mind run away from you too much, plus it could still be benign! 

It feels like an eternity waiting, I made plans for every day and just kept as busy as I could, definitely don't google, stick to Macmillan and the NHS for information, google would have you scared witless.

xx

Hi EMBP,

Sorry to see you here. When I was in hospital a young lady opposite me had to have a hysterectomy due to a mass the size of an iceberg lettuce in there. It was benign. So, until you know otherwise hang on to that thought and keep busy!! xxxxx