Hey there,
I was diagnosed with womb cancer back in February this year and without stating exactly I'm in my late 20's so this was quite unexpected news. The doctor that diagnosed me recommend a hysterectomy, or to try losing weight with having a coil inserted. I chose the coil route mainly due to worrying about the aftermath straight after surgery. However now it's coming closer (next month) to my second biopsy to see how things are going I'm wondering if I made the right decision in terms of what if it has grown, what if it hasn't had an effect etc.
Back in December 2018 I was taken to hospital due to 3 days of heavy bleeding where I was anaemic and couldn't stand without getting out of breath etc. I was given pills and such to stop the bleeding and iron supplements, checked up on and thankfully sent back home. However even now I still get dizzy spells and feel like I'm weaker than I used to be and I know it's not a massive change to me but it's enough that bothers me, like even after the cancers gone will I still feel this way, will I ever get back to "normal"?
I guess I'm still trying to figure things out and how I should feel, but I don't want to let this get me down. In some ways its a good thing for pushing me to get healthier and shred the weight, I've already lost some weight which I never would have done without this, so every cloud has it's silver lining I guess.
Heya Aqua,
Welcome to the forum though I'm sorry you need to be here.
I'm 37, diagnosed with endometrial cancer a couple of years ago, and another cancer when I was 30. So a bit older than yourself, but still young in the world of some cancers!
I chose the hormone suppression route as well as there are so many possible complications with the surgery, as well as long term health implications going through the menopause at such a young age. I was given the coil as well as oral progesterone - were you given tablets too?
Out of interest, how was your first hysteroscopy check after staring the treatment? Did it show any changes in your womb lining?
With your dizzy spells, it's always best to check the obvious first. So, are you drinking enough fluids every day? And even though you're trying to lose weight, are you eating enough of a well balanced diet? Are you getting enough sleep? Then it moves on to more medical issues... Are you still bleeding? Have you had a blood test recently to check your vitamins, minerals, blood count, etc?
Lots of questions there. Lol. Sorry.
Lass
Xx
I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.
I was given tranexamic acid when I was let out of hospital, then went back to the doctors as I was still bleeding after the week on them (or whatever the maximum days was I can't remember) and given provera tablets (which I have now stopped as the coil has stopped the bleeding and settled - therefore doctors say no need for tablets).
I haven't had another hysteroscopy yet - maybe they will do one next month when I go for another biopsy? But the one I had around January time before the diagnosis and the lining was 33mm thick I believe they said 3x what it should be anyway.
I'm hoping its something as simple as that, when I mentioned to my mother she stated it could be the fluids as I tend to almost forget to drink some times. Thankfully the bleeding has stopped and I'm on a diet from the doctors so that should be fine, and they also have me on vitamin D supplements at the moment. I guess when I go dizzy like that its just paranoia to jump straight to the cancer side of things.
No no it's fine haha, and sorry to hear about you, cancer once is bad enough let alone twice in a short time frame.
Heya,
Yeh, I'm super special and broken. Lol. It's actually laughable how broken I am!
Yeh, I've had transexamic acid a few times and I'm pretty sure it does sod all. Lol. The provera tablets are often used in conjunction with the coil. So if they don't see any change in the lining of your womb, then adding in the prover constantly is an option. Provera is progesterone, which is what's on the Mirena Coil. So it just increases the dose to make sure that lining is all gone.
Ah k on the hysteroscopy. I think I misread what you'd written, sorry. Ideally they should be using the hysteroscope to do the biopsy. It means they can see exactly where they are taking the biopsy from, but it also means they can actually see the lining of your womb and what's going on with it. They've taken pictures of mine each time so they can note the changes each time.
In regards to the fluids, the easiest thing to do is to grab a bottle. Now whether that is a refillable, reusable one or a one use one is up to you. Make sure it's a litre in size. Then by lunch, make sure half of it is gone, and by bed make sure it's empty. Once you're used to that, increase that to emptying it by lunch, refilling or getting another, then finishing the second by bed. If you carry it with you, you hopefully won't forget.
And as a heads up, best to get into the habit now. Because as you age, if you don't drink enough then you are looking at yeast infections and UTIs. And they def aren't fun, especially not when they're worse each time, and worse the less you drink. So def something to change now before it's too late!
But yeh, whenever something odd happens after a cancer diagnosis it's perfectly natural to jump straight to it being a complication or spread of the cancer. I'd say we've all done it at least once! But most of the time, it's something completely different and sometimes even something easily fixed!
Lass
Xx
I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.
Bless you, sorry to hear that.
Haha I have to agree on that they did nothing for me either tbh. Okay good to know that thanks. I don't mind if I do have to go back onto it, it's been kind of like a safety net for me for a while in terms of stopping heavy bleeds but we'll see. If the linings shrunk then that's also a good thing.
Don't worry that's probably me, I'm not the best at explaining things clearly haha. Fingers crossed it's gone down. Okay that makes more sense, the doctors never really explained what was happening at my first one just that they were going to do it to see what was going on, they weren't really thinking cancer but I think they did it as a way to cover all bases. All i remember is that it hurt when they did the biopsy - not friendly at all.
Okay that's a good idea I will give that a go for sure. Thanks for the heads up...don't think I want either of those problems later on!
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