Not sure what to do

Heya Kezzie, 

Sorry to hear but you're in good company. 

A few questions to enable folks to help you further:

• Age?
• Diagnosed with what?
• Stage?
• Grade? 
• Scared of what exactly? 

With the answers to those then folks will be able to share their relevant experiences and help quash those fears.

Lass

Xx

Hi, sorry. I’m 48, Stage 1b Stromal sarcoma. Low grade. But I thought I’d get away with “just hysterectomy “, Consultant said no, there will b treatment too. Totally crumbled then. It’s the waiting is the worst xx 

Absolutely nothing to apologise for at all, you've a lot going on in your head at the moment. 

To find you some positives to try and look at and hold on to.... 

They have found the reason for whatever your symptoms were. So you weren't imagining things or overreacting - as a few of us have been told in the past.

What you've got is treatable, and it sounds like they think they can get rid of it all with a couple of steps. So, after - at a guess - 2 years of treatment and recovery, you should be able to get on with life like it never happened.

Hopefully one of the lovely ladies here who have had the same type and treatment as you will pop in with what their treatment was and how they felt and coped through it all. 

But in the meantime, just know you're going to find strength you didn't know you had, but you're still going to have wobbles and temper flares and all sorts of weird build ups of emotion. Just be kind to yourself, forgive yourself, treat yourself as and when you need to and you'll get through this with your head held high. 

Lass

Xx

Thanks Lass, very mixed emotions. When I keep active I’m generally ok. And then it just flits through the brain long enough to stop you in your tracks again xx 

Hi Kezzie,

Sorry you find yourself in this position. I think you will need help with 4 young children. They are tiring at the best of times, and you will need to look after yourself to get better for them. Have you a partner, mum, sister who could help? You should not lift for a while, so if the children are babies you can't lift them. Are they old enough to understand you are poorly? My grand daughter was nearly 3 years old when I was diagnosed. She understood that I couldn't have her on my knee( for a while), and that I couldn't walk fast!! I protected my tummy with a cushion in case she forgot!!!

She also wanted to look at the operation. (Only 3 tiny scars, but the tummy button was covered in iodine and looked a mess). I was a bit dubious at letting her look in case it scared her, but she didn't turn a hair, and wanted to check on things for a few weeks!!

Wishing you all the best xxxxx

Hi NannyAnny, my husband is really supportive. My twins are nearly 13, next wee boy nearly 10 and youngest 8. Haven’t told them anything other than doctor looking at my tummy. Will decide what to tell him when know the treatment. They will have to be told I’m having an operation. My twins exams are the week before surgery. So I don’t want to upset them before hand. 

Thanks for your kind wishes 

xx

Just wanted to make an addition there Nanny... 

"Have you a partner, mum, sister* who could help?"

*Dad, or brother.

Nothing at all to stop the blokes stepping up and helping. Two of my brothers help babysit our niece and nephew when needed and they're free. They're just as capable as a female when it comes to childcare. 

Lass

Xx

Hi Kezzie,

At those ages they might be able to help you. Its surprising what children can do when they want to!!

We had a family upset just before my daughter sat her 'A' leveis, and I worried about that. She came out with 3 A passes!!!

Much as we like to protect our children, they have to learn that life is not all roses. People do get ill, and need operations. I think they might surprise you.

Just seen Las' post!! Quite agree, get everyone involved!!!  When I was just out of hospital my son in law offered to cook a meal. He and daughter took over the kitchen and made 2 pizza. As he was getting it out of the oven  one of them slid neatly onto the floor!! Fortunately he had over catered!!    xxxx

Hi NannyAnny 

they probably would surprise you, just not quite ready to tell them. Have a booklet about it and the support services are amazing 

xx 

Hi Lass, 

youre right! I’ve no brothers, my dad is 81 and unwell himself. But my brother in law came around last Tuesday before 5am so my husband and I could go to the hospital appointment. He got the 4 breakfasted and off to school no problem 

xx