sarcoma

Oh mum999, I know that’s definitely not what you wanted to hear. I’m so sorry. You must be absolutely reeling with the shock of it all. The positive news is that it doesn’t appear to have spread though I can u derstand it might not seem that way just now. 

I’m sure you’ll have lots of questions to ask once you’ve had chance to start taking this in. I had an aggressive type of cancer and found that once I’d met the team and heard the plan and asked questions I felt things were a little more under control. I hope you will too. Yes the 9th May seems a long time away but it does give you chance to think about some of what you’ve been said. Eg are there any pros and cons to going to the private hospital? Will you have the same surgeons? etc etc.  

My exoerience is very different to yours. I know there are one or two ladies with sarcoma on the forum and hopefully they’ll pop in soon to share their experience with you. Meanwhile do make use of your clinical nurse specialist - she won’t mind you ringing with queries and it is best to get them answered when you’re thinking of them if you can. It might also help to ring the Macmillan helpline on 0808 808 0000 and  speak to one of the nurses there tooThey can’t talk about your specific case but they can chat generally and help you formulate the questions you need to ask. 

I’m sending you some gentle hugs. I know nothing I say can change things or make you feel any less anxious but please know that you’re not alone. We are all here for you. Remembering you in my prayers today x

Thank you Fairy cake . My next big step is telling our children ( adults really) Going to leeds to see youngest daughter tomorrow, seeing eldest on Saturday and then will have to mail/ facetime others as one lives in Dubai and one lives in Slovakia. That's the hardest part for me - always want to protect children from the harsh bits of life :( xx

Hiya again mum999, sorry to hear the news wasn't better but I guess it could have been a lot worse!  Apologies if that sounds trite I'm desperately trying to think of something reassuring to say but I don't have any experience or knowledge of this particular type of womb cancer.  It certainly is good news that it hasn't spread, and it's also good that your team are considering your case very carefully.    You're right it now hard to tell the children and we try to protect them but you will probably find that they will be a great support to you and it will be a relief when you have talked to them.    Thinking of you hand wishing you well, hugs xx

Life will be on hold until your appointment but this will allow you to process the information you’ve received. The team will form a plan and to them this is their area of expertise so you will know exactly what you’re dealing with. Thinking of you and hope you get through these next few days. Stay strong x