Hello all, I wondered if I could ask for some advice and information, please. Three days ago my mother was diagnosed with cancer of the lining of the womb, from the results of a biopsy taken the previous week. She now has to wait for an MRI to determine how far the cancer has spread and treatment.
I wasn't present at the interview with the consultant, but he apparently said that he was 'hopeful' the cancer had been diagnosed at stage 1 or 2. My mother's only definite symptom is discharge and a bit of bleeding when she goes to the bathroom. Last year she suffered some weight loss, but then her weight stabilised and there has been no obvious loss in recent months. She has no pain or cough or anything like that.
I realise we are in the early stages of the process, but from the above information is it possible to guess at how advanced the cancer might be?
Thank you to anyone who has the time and patience to respond.
Hi Robeh,
unfortunately the only way to know what's happening is to get the MRI results back. Have they told your mum she will have a hysterectomy?
Womb cancer is often easily treated when found early, I needed a hysterectomy and that was my only treatment, before my operation I had an MRI scan to determine the extent of my tumour and if there was any spread, but they do seem to get a slight indication of what's happening when they look inside the womb and take the biopsy, my surgeons guess was accurate in the end up.
Try and keep busy and distracted whilst you wait, the waiting is the worst part, when you have a plan you feel more like you are taking action.
Whatever the outcome we are here to help, there are lots of women here who have been successfully treated for all different stages (how far it's spread) and grades (the speed it grows) of cancer who can share their experience.
Lots of love
xx
Hi ,
I Hope you don't have to wait long for the MRI. I know that some hospitals , like the one I went to, seem to take a while to do it. Don't be too surprised or worried if you don't really get any feed back after the MRI. I know I didn't. It is likely that your mother will have a hysterectomy and the team treating your mother will get valuable information that enables them to plan the surgery. For instance it may help them decide whether keyhole or open surgery is most suitable and hence which surgeon will do it.
In any event you will probably not be told anything until the results of the MRI have been discussed by the MDT (a Multi Disciplinary Team of professionals like surgeons, oncologists, specialist nurses etc) and a decision made as to treatment These meetings take place at various intervals so be prepared for another wait!
It sounds as though your Mum has been seen at an early stage. Lots of people here have been successfully treated with only surgery and recovered quickly. You don't say how old your Mum is but she sounds as though she is otherwise in good health so at the moment the best thing to do is to enjoy the good weather while you wait!
XXXX
Anne
(Class of 2015!)
Hello ,
Firstly I am really sorry to hear about your Mothers diagnosis. Once the MRI is done it does give a good indication of the spread, and this gives the oncologist an idea of treatment options. From what your mother has said it looks early stage, so fingers crossed that's the case. Its possible that they will preform a hysterectomy, and depending on the final stage depends on what further treatment would be needed.
I was just before my 38 th birthday when I found out I had cancer and all kinds of emotions came out, denial, anger etc. So I hope you are both getting support. I was staged 1a grade 2 and I had a total hysterectomy with my ovaries removed as my only treatment. Its important to say at an early stage often that's all that's needed and very treatable.
Everyone here totally understands what your both going though and very knowledgeable with different stages and grades and really happy to help.
Sending you some virtual hugs and there is lots to go around.
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Hello RobeH
I'm very sorry to hear about your Mums diagnosis. It's such a nasty shock for you both. It's natural to want to get tests done quickly and then to hear results straight away and that's how it would be in an ideal world. I the ladies that the MRI will need to be discussed by the multi disciplinary team before they say anything. I was diagnosed in 2016 and had a ct scan and an MRI very quickly afterwards. It was a massive whirlwind of appointments. I wasn't actually told any ct scan or MRI results at all, just that they were to help the doctors plan my surgery. Has your Mum been allocated a clinical nurse specialist? If she has, the nurse is a good person to ring and ask questions about when scans and results might happen. They have access to your Mums records and act advice liaison between you and thecmedical team, especially in these early stages.
i hope all goes well for your Mum. Ask away with any questions - we're all happy to help if we can. Gentle hugs to you both x
I had only a few days of post menopausal bleeding and within 2 weeks of seeing my GP I’d had a biopsy and found I had grade 3. It hadn’t spread and I’ve since had a hysterectomy then radiotherapy. I expect to make a full recovery.
The scan will be able to give you all the information you need. Once you know what the treatment will be it is much easier to deal with
Good luck to your Mum
Thank you. I thought that grade 3 meant the cancer had spread, though? This is all new to me.
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