Uterine struggling emotionally

Hi kimi33

Not sure what your diagnosis is, i started bleeding in Dec, 64 yrs old, went into my menopause 2018, I have had to have a full hysterectomy which Ian recovering from 

I don't want to go into my diagnosis at the moment, I dont won't to stress you anymore My problem was in in my uterus which was contend, I know its hard worring about the results, I had to wait 8 weeks for the histology results

All I told myself was don't worry until there anything is  to worry about and I know that is hard, I wish you all the best for your results 

Bless you 

Hi Kimi33

I think the way you are feeling at the moment is completely normal after a cancer diagnosis I’m sure many of us in this forum can empathise with you. It is frightening when you don’t have the full picture and are waiting for results. You will feel better once you have all the results and a treatment plan because you will be able to take a bit of control back. This group is full of women with a wealth of different experiences so feel free to rant, ask questions blow off steam…there will always be someone who has been through it before. You’re right the hot weather doesn’t help it’s awful at the moment. Try to take one day at the time and be kind to yourself. Sending hugs

Linda xxx

Hi Kimi33

i found the period waiting for results really tough, so your feelings yesterday perfectly normal. I went through worse case scenarios as well.

think you had your MRI at the weekend, and your MDT meet Monday or Tuesday. Is it worth contacting your CNS this pm to ask when you would expect to hear? The lack of control over things makes things worse, so if you knew when you will hear may help. It does get easier once you know what you are dealing with.

Thinking of you xx

Thank you I will do x

hi Kimi33

I am sorry that you are struggling emotionally with it all- I think most of us have been there and understand. Having a diagnosis is really tough and waiting for the results of the scans is hard. 

Results can vary between hospitals but my results took around a week to come back. If you do not hear anything within a couple of days there is no harm in giving them a call and asking whether there are any updates. 

I think most people find this time hard and I know I became aware of any aches and pains and feared the worst. It is perhaps helpful to try to think of the scans as just trying to pin point exactly where any cancer is so that they can come up with the best way to treat it. It can also help to know that endometrial cancer is normally a very treatable cancer.

I felt much better once I had the results of the testing and was told about my treatment plan, so I knew what to expect and when. 

I can understand that it is hard to sleep and the heatwave isn't helping.

We do have the Macmillan Support Line available from 8am-8pm everyday and do please give it a call if it would help to talk things through. Sometimes it can help to talk to someone neutral. 

I hope that your results come back really soon and you get your treatment plan. For me, things happened quickly once all the testing was done.

In the meantime we are here when you need us.

Jane

Thank you Jane, your words have helped me be a bit more rational about it, I appreciate it x

Hi Kimi,

I waited 3 weeks for full results. Mine did not come back all at once. I felt similar to you and didn’t know what to do as I overthink and always like to resolve things. I found the macmillans help line to be incredible for support and also speaking with the lovely ladies here who had all gone through similar. It’s made such a difference x

I saw the surgeon last week, the said it was grade 3 (fast growing) went through the surgical procedure with me explaining they may do it robotically or by opening me up, then I would have radiation, the amount I would need would depend on whether they could remove lymph nodes and test them, I just said I would take whatever they can throw at it, I am 61 but not ready to go just yet! Having good days and very bad days, very tired. Worrying all the time, and over thinking every little twinge or ache. Hoping the surgery is soon. 

Hi Kimi,

I’m 53. I was diagnosed with stage 3CII with lymph node involvement . I had pre op chemo, a robotic full hysterectomy and just had my final 6th chemo and am heading to 5 weeks of daily radiotherapy. I was overwhelmed by the treatment plan but I have to say the treatment is swift and the clinical team have been amazing. It will all come together, I totally understand your worries as I had the same. I also said I would take the treatment. I really found the macmillans phone line to be incredibly useful to speak with a nurse about how I felt as they will discuss treatment and your concerns they are so supportive , it really helped plus again the group here are incredible.  I hope you hear about your treatment soon and am sending you lots of positive energy !!!. 

Thank you so much for that! Not mentioned chemo yet at all, they think it is confined to uterus going by ct scan and mri, we will see, it's a very frightening experience isn't it, hope you are doing well and I will look forward to hearing how you are coping. Xx