Good morning, I had my review yesterday. My cancer was less than 50% invasive and was 22mm from tumor to.outer surface. I was a little all over the place as when I went into it it was not my consultant taking it and they were actually there in clinic. The one i seen was v nice and allowed me my time and to ask anything i wanted but im such a shy person my head went blank and tbh i felt so disappointed ive waited 12 wks fr this app, even with my questions wrote down in front of me i choked and couldn't get in all i wanted. What I found out was there was no pole or genetic testing done I had just assumed this would be as im under 45. They just said it was not needed in my case Its left me slightly nervous. Is this normal ? Im home with a couple of things I didn't ask really feel a bit of a silly billy.
Morning Ma80
you are not a silly billy. It is perfectly unstandable, and they will understand.
when I had my appt they said there was a lot to take in, but if I had any further questions afterwards, to email my nurse and she would get back to me. When I sent them in, we agreed a date later the same week to discuss, which gave her time to speak to my oncologist and get answers.
i don’t know anything about Pole or genetics testing, others here will though.
if I was you, I would take a deep breathe, and when you feel up to it, revisit the list of questions, decide if there are any new ones, and then send them across by email. I too can get worked up in appts and find it easier to write things down at times.
good luck x
Hi Ma80
I would be the same with appointments. I also wrote things down but would still forget to ask.
Best thing to do is pop and email to your CNS with your questions and they should get back to you within a couple of days. I sometimes used to get an email back if it was a quick question or a phone call if things needed to be explored further.
You are not being silly, pop them an email and get some clarification. I did not as far as I am aware have any genetic testing although I did get asked in detail about family history. I think that it was something to do with my biopsy results- no MMR, P53 wildtype etc. I can't remember now exactly all the details.
Jane
Thank you, I never actually thought about the biopsy stage maybe it was it showed i needed no more genetic testing. The logical me understands the team I have are v good my consultant is head of department and I trust their word. Then there's the bit of me that hasnt been able to accept any logic through this ive been so afraid.
I remember after the biopsy there were different genetic markers showing. After the post op results every letter that comes through has the same genetic markers after the cancer type and stage.
Pop them an email- mine never minded going through things again and sometimes it could be simple explanation - better than worrying about it too.
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