Histology results back

Fantastic news!

Hi Nicky

Thats fantastic news. My diagnosis was Stage 1b grade 2 with extensive LVSI. I was ready to start radiotherapy and had had all the planning done and had a call from my consultant to say I had the POLE mutation. She advised that recent studies showed adjuvant treatment was not necessary and so the radiotherapy was cancelled. I was completely shocked as I was all geared up for treatment and still can’t quite believe it 21/2 years later. I have regular CT scans and internal exams though and will be doing so until I hit 5 years. From my under different hospitals have different policies on follow up. Good luck from one mutant to another !

Linda xxx

Hi Nicky, that’s excellent news, so pleased for you! If you do feel you’d prefer in person check ups rather than being on patient-led follow you can always request it - that’s what I did. You may also benefit from asking about your hospital’s “life after cancer” course which is free and can help people move on.

Hi Nicky

That's great news. 

it's always important to wait for post op results and although many people focus on the stage and grade, it is, as you have found out- not the only important thing. There have been other ladies on here with the POLE mutation and they have had a similar path to you. It's great that it means no further treatment. 

Although you don't need any check ups do contact your CNS is you do get any issues in the future. I am currently on patient led follow up and can contact my CNS at any point for support or advice. 

I wish you well for the future and if you need anything you know where we are. Sometimes after a cancer experience it can be afterwards that we can start processing everything. I found the HOPE course helpful. It is free and can be done online via Macmillan. 

Jane

That's amazing new Nicky, we've gone through this awful journey together and I'm so pleased for you.

Fingers crossed I get the same outcome when I (eventually) get my results.

I hope you're celebrating x

Thank you Jane, I have so appreciated both your and everyone else's advice and support. Strangely I feel really flat today, I think I was so psyched up to deal with treatment and now I almost don't know what to do with myself. The next thing to think about will be when I return to work, but I don't feel nearly ready enough to do so. I think I really need to take some time to get myself better both physically and mentally. And I need to think about some changes to work. But that's for another day. 

Thanks Lizbot, please let us all know how it goes, I am hoping all the best for you. Thanks for being there for me on this journey, it really helps to not do this alone. 

Thanks Waidh and thanks for your advice and support, it has really helped not to have gone through this journey along, i wish you all the best

It’s a strange life this cancer journey. Even at the end of all my treatment, scan to say all good, I never really felt in mood for celebrating, too much to process. As you say “ for another day” re sorting out work. Take the time you need 

Thanks Marmite fan, I have been so lucky to have met so many supportive women like yourself online on this forum, thanks again for your advice and support.