Failed hysteroscopy, what next?

Hi

I am sorry to hear that you are not getting the explanation and clarification that you need. 

I wonder if it is worth making an appointment with your GP to go through everything on your record to see if they can see what may be going on. Every time I was seen at the hospital my GP was sent an electronic update and I wonder whether you GP is the same. Your GP will also have all your other medical history regarding being unable to have a general anaesthetic etc

My own GP was able to then contact the hospital directly and move things forward. 

With womb cancer the cancer moat commonly starts in the glandular cells of the endometrium and those are the cells that are normally biopsied during a hysteroscopy. However sometimes womb cancer can begin in the muscular wall of the womb- the myometrium and this may be a type of uterine sarcoma. Leiomyosarcoma is one of these types. When under going any testing that is hopefully ruling out a cancer- looking on your health summary may say something like query endometrial cancer- at this stage- and in your case, where there has not been a biopsy- no one can say for sure what is going on. It sounds like they are trying to rule out leiomyosarcoma. They have also said they believe there is something benign going on. 

I wonder if the follow up scan and face to face appointment in April is to look again to see whether anything has changed or if the mass has remained the same. It may be this that could suggest whether it is benign or not. 

However waiting until April to get further information does sound a long time and you have questions that you need answers to now. This is why I think it would not hurt to go to your GP and ask to go through everything available and for then to ask the GP to contact the hospital for an update. 

You could also give the Support Line a call and talk things through with one of the nurses. They would have the medical knowledge to know what would happen if a hysteroscopy/biopsy can not go ahead and what may happen instead. 

I am sorry that you are having to go through this. It must feel very worrying and you just want to know what is going on. I hope that your GP may be able to chase things up for you.

Jane

• Thank you Jane 2511. I did speak with my gp, she's incredibly supportive I'm sure luck in that respect. She said to see what they say following this scan from 16th Jan once I ring as still have no rults and neither has she. I next speak with her in a fortnight. I will try to speak with her before then, much appreciated

I'm glad your GP is supportive. Mine was and it does make a difference. Hopefully once the results come through she can have a look for you.

I'm sorry to hear about this. on Friday 17th. my Dr gave me hysteroscopy appointment,  because the amount of bleeding I am having,  I also have fibroids. which won't help. and I'm ver worry about it. , so. I thought thst hysteroscopy procedure was painless,  but it does hurt,  and while I was having a lot of bleeding and hurting while doing this procedure. the Dr declined it. cos I wanted a rest because of the pain. and walking away leaving me  bleeding to get dressed,  while the nurse were asking if I were ok?.. ..I felt that they didn't truly care and didn't felt the care they were supposed to be given , and she recommended me to do it under general anaesthetic,  but. I don't feel comfortable with them. and it was at St Peter's hospital in Chertsey hospital. since then. my periods hadn't stopped and is even more heavy.with clots,  and absolutely worried. I could become anemic? what should I do please.. thanks 

Hi Star28, I’m sorry you had a difficult experience. I had a failed hysteroscopy in 2021 where the consultant opted to stop as it was causing me so much pain. I was extremely disappointed. I then had one under GA 5 weeks later and it was a breeze, very relaxed and so much easier. I walked down to theatre at 10am and was back in the recovery ward by 11am, then went home about midday.

• it sounds like we had a similar situation,  and because the pain the lady Dr stopped,  the nurse put me gas , but it didn't worked!.. and i was having a lot of bleeding after that!, and she said that will arrange another appointment to go under anaesthetic,  I wish there were  another way to do this? , like MRI scan?, would that shows if there's sthing serious perhaps? .. 

Hi Star28, 

I still haven't had mine ether, but as I can't have a general either an MDT was had at the gynaecology oncology and they said another MRI and a spinal anaesthetic for the hysteroscopy.  So apparently I'll be awake but mum from waist down for few hours whilst they do the procedure. An anaesthetist is present and it's in theatre. I'm having 3rd MRI tomorrow and then hysteroscopy and biopsies finally on Tuesday. I shall let you know what it's like. Hopefully in the meantime they'll give you scan to monitor and blood tests. 

Thanks,  and i hope all goes well    I'm probably thinking to giving up. I just don't like pain 

Star, a hysteroscopy provides a biopsy which is important. The level of general anaesthetic for a hysteroscopy is low and mine was over very quickly, it was brilliant and I wished I’d chosen that route first! 

Star28, I had zero pain from the hysteroscopy with general anaesthetic, was in and out of hospital in couple of hours, it's a world away from what is tried in outpatients clinic. I'd have that again but too dangerous for my condition. So spinal is next option. It's not done in outpatient clinic like what you'd previously been through. Please consider it.

I understand the not wanting to go ahead also, as what I've had over past few months, feeling a bit like they just not hearing me and seeming to put not quite the correct reasons for it not happening.  But I would snap it up on general if I could. 

Please keep us posted Star28.