I recently joined back in October, when a vascular mass was found in the womb, turns out to be in myometrium not endometrium following mri. Anyhow attempts at hysteroscopy failed, first attempt at gaining endometrial cells because the pipelle couldn't get through the cervix it was closed after 2cm. Saw another 2 times for it first I was too nervous, second they used large speculum but smallest was requested twice. Then after promised gas n air was told can't due to COPD which I understand just confused as to why it was written up and still is? Then I have burnt out Takayasu, so have subclavian, carotid occlusion and cerebral hypoperfusion. BP was to be measured constant it wasn't until I was leaving and felt tired as I had to say stop as it was painful.
Had been referred to see if spinal anaesthetic possible? Then another appointment this time with oncology clinic and expected a consultation as it said but was for another hysteroscopy, I said no and explained why, and then was told it wouldn't be possible anyway because it's in myometrium! Yet again it's I declined. But found out I have "cervix is anteverted, the uterine body appears severely retroflexed. Endometrium orientated at 90 degrees to the endocervical canal." on MRI at this appointment when discussing next steps. She said even during general anaesthetic would be difficult to obtain and usually hysterectomy is gold standard.
However I can't have GA as have the complications of cerebral hypoperfusion and the stenosises. My question if this was known back on 28/29th October, why was hysteroscopy pushed so badly in outpatient, why have they said I declined each time when the physicality meant not safe/very painful and can't have anaesthetic.
So now Leiomyosarcoma and cancer has appeared on health summary but I've been told probably benign but not sure in face to face and follow up scan in April. I was called for that MRI 16th January instead, just over a month from last consultation.
I'm not being explained to properly and it's scary
Especially saying I declined as too anxious, that's not true it was too painful.
I guess I'm wondering if biopsy not possible how do I get treatment?
