Long wait

I am not suprised you are unhappy! It's good news that you are in the early stage of EC but you should have had more support and possibly treatment by now. Take comfort from the fact that this is treatable and that you are in the early stages but seek help. Contact your hospital team - the CNS team OR your GP. You may be able to have hormone treatment as a holding mechanism until they sort out the next steps. Keep us posted and good luck.

Hi, I am 59 and is also overweight with BMI at 36. I am diagnosed at Grade 1, Stage 1B and had my operation in Nov 2025. I was not asked to reduce weight for the operation.

I believe the doctors have their reasons to ask you to reduce your BMI to 40. Pls listen to the doctor and follow what they say.  Pls check with GP if there are ways to help you to reduce weight faster. I know it is not easy to reduce weight.

I think it is important to go for the operation soonest since it is only Stage1 so that the illness will not progress to an incurable one.

Hi Lou

Am sorry to hear that you have had a diagnosis of stage 1 endometrial cancer. 

Sometimes BMI can mean that surgery is more challenging and sometimes ladies can be advised to try to lose weight. However it is not acceptable for the doctor to not treat you with respect and dignity. Losing weight is not easy for anyone and especially during a stressful time such as a cancer diagnosis. 

Are you able to go to your GP for advice and support about losing weight? I also wonder whether it is worth talking about how you are feeling with the lack of support and not wanting to go back to the hospital to see the same consultant. I wonder if there would be a different consultant that you could be referred to. You do need to be seen and you have every right to ask questions about potential treatments. Perhaps write a list of questions for your GP and do an online consultation -I find it helpful doing this as then they get back to you with the info that you need.

To give an idea the questions I would ask would be along these lines..........

1. Is there support for weight loss available for me- dietician, medication

2. How much weight would I need to lose to be in a safe range for surgery

3. What treatment is available to me while I am losing weight. Could a hormone coil/tablets be used to stabilise the cancer

4.Is there another consultant or even another hospital- I could see as I have not had a positive experience with mine and do not want to go through the same again.

5. What other treatment may be suitable for my grade and stage of cancer if surgery can not be done. 

These are only ideas but would be similar to what I would ask.

I am sorry that you have not had the support you need. We are here if you need us.

Jane

I'm sorry that you havent been given more support. Weight loss injections work very well for some people.  Although there can be rapid weight gain when they stop it might help you get surgery and some people stay on a low maintenance dose and keep the weight off. Has anyone ever discussed injections and/or bariatric surgery with you? If it is the consultant who has been rude to you then perhaps you could see a different consultant. After my initial appointment I saw a specialist nurse, maybe check if your hospital has any alternative to the consultant as I've been happy with the nurse practitioner. You could also ask your gp for support with the weight loss.

In addition to offering support with weight loss you should also have a discussion about whether hormone treatment and/ or radiation would be available to you.  That discussion would need to be with someone at the hospital.

I’m really sorry you’re dealing with this. Delays and being treated rudely are not okay, and you deserve better care. You’re not alone—consider a second opinion if you can

On reading your reply to 'Lou' I think your list is very positive and reassuring for people who are lost in the mire of information. Your suggestion of the possibility of changing to another consultant or another hospital is something not everyone thinks of, so thank you for your input on all of this, as so many of us need a framework like this when we are feeling emotional. Thank you!