Limbo

Hi I’m in a similar situation, was diagnosed around 5 weeks ago, grade 1 and they believe stage 1a after my MRI. I should have had a hysterectomy last Thursday however due to the amount of endometriosis they found, I’ve been transferred to a specialist hospital and they’re having a meeting tomorrow to decide whether they can operate or not - like yourself, I’m in limbo, petrified and have convinced myself I’m going to die. 

This is despite repeated assurances from my GP and CNS that I will get through this and EC is very treatable if caught early. 

Have you contacted your CNS and MacMillan support line to try to get some reassurance? I’ve found they’ve been a help. Your GP should be able to provide support too. Good luck x

Hi Ma80

I am sorry that you have not yet heard back from your hospital regarding the MRI. 

I wonder if it is worth contacting your GP to see if they can contact hospital direct to arrange appointment. Mine was able to hurry things up for me. They were able to contact them directly on an internal phoneline. 

Endometrial cancer is normally a very treatable cancer. I know that I also became ultra aware of any sensations in my body and feared the worst. Looking back I think most were caused by anxiety and just being aware of every ache an pain. 

Do give the Support Line a call if it would help to talk things through with someone. 

And remember the Online Community is still here over Christmas if you need us.

Jane

Thankyou so much, this site with yiu guys and the nurses have kept me sane the last few days.  I took myself out for the morning to clear my mind. I have just had a call to say my mri is new yrs eve the cancer on the biopsy is low grade and as it stands they are v confident I will be ok. I will be having a full hysterectomy everything out January. I am wondering a bit now if everything looks positive why are they saying I have to have ovaries and cervix out aswell. I guess I just will worry about everything now. 

Hi this is very similar to my situation and yet I’m still thinking the absolute worst; I’m assuming that’s normal when you’ve had this earth shattering news. I’ve also reached out to local cancer support groups and spoken with my GP about medication if that would help you? Your MRI will seem a million miles away right now, mine was along the same timescale. Just look after yourself in the meantime as best you can. 
I’ve also found this site quite helpful 

Am glad you have had your MRI appointment through. 

It is normal to have the womb, cervix, fallopian tubes and ovaries out- this is the standard surgery. I was told it was the safest way to ensure that the cancer was removed. 

If the cancer biopsy shows low grade cells it would be unusual for that to change. The MRI is just to double check where the cancer is in the body before the surgery is done. 

Hopefully you will be back home recovering this time next month. 

Thank you again, this space has really helped me this week and i know will going fwd. I know I have a way to go i did find i settled a lot once I got some dates in place. The nurse was lovely and said the decision is based on looking at my age, my medical history and that I have had all my children now everything out would be what they would see as best for me no other options will be discussed.  They will arrange some therapy and help for me in regards to going into the menopause aswell. She was v sure the biopsy sample showed low grade.  

I was diagnosed on Thursday and was given a date for my MRI there and then, had it yesterday.  The nurses also gave me a number to give them a ring at any time if tequired. Due to Xmas holidays not expecting to hear back until beginning of the new year. Had a look on the hospitals website and they have their MDT meetings on a Tuesday and appointments with results are on a Wednesday. So hoping at least. Is there something similar you can contact at the hospital?