Hi everyone today is a really tough day im got my news Thursday and its a blur. I am so terrified I haven't been able to eat more than a few slices of toast since. I have read up on a lot of stories and what im getting scared of is the fact the consultant could tell me from the biopsy I definitely have cancer. Not abnormal cells or have be looked at again but you have cancer. Absolute shock , my hysterscopy went so well, she herself told me on the day everything looked great. Im 44 still having regular periods symptoms wise I have no unusual bleeding I have had occasional spoting just before my period a few times if that this year. My mri has no date just I need one to determine where the cancer is and it will be before Dec 30th. I did have a clear smear, pelvic ultrasound in dec 2023 womb ovaries looked normal although ive had different opinions online on weather I can take solace in that or not. I am convinced im going to die and any flicker of feeling positive I quickly stamp out I am to scared to be positive.
Hi Ma80
I'm sorry that you've had to join us here and that you're in shock. It is a lot to take in.
Please don't research using Google, so much wrong or out of date info out there. You are best to check things out here. If you need someone to talk to you can call the helpline, the number is at the bottom of the page and I think they're available from 8am -8pm.
H
Hi there, you’re in a similar position to myself; I’m 46 and was diagnosed with grade 1 EC through a biopsy on a polyp. That was on 12th November. My MRI was attached for 4th December and a hysterectomy for 18th December. However the MRI showed a lot of endometriosis and so I’ve been transferred to a specialist hospital. I’ve not had a date yet and so the anxiety and encroaching depression continues.
do you have a Grade? My MRI suggests stage 1a.
Google is not our friend and yet I can’t resist it myself. I’ve sought support from Maggies, MacMillan and a local support centre and they’ve all said not to Google and if you must search, then use this site only.
I’m also convinced that I’m going to die despite every single health professional assuring me that I’m not and that EC is one of their favourites to treat as it’s usually positive to resolve - for some reason, they can tell me this until they’re blue in the face but it makes no difference, it just won’t sink in
I know how awful this is, I can’t stop crying - please keep reaching out to all sources, including on here
Hi Ma80
I understand that it is all feeling a shock right now.
The purpose of the biopsy is to tell if there are any cancer cells present. Although things may have looked ok during the hysteroscopy, it does not unfortunately mean that there are no tiny cells there. Unfortunately although it is more common to get a diagnosis after an episode of post menopausal bleeding- it can be diagnosed with no real symptoms or minor symptoms. Maybe try and look at it that it is good that you had the biopsy when you did as it has possibly identified a cancer at the very earliest possible stage before there were visible changes during the camera test and before it has caused any symptoms. For some ladies spotting can be a symptom that something is not quite as it should be.
I think it is always difficult to go through a diagnosis at this time of year but we are here to offer support. The MRI is only a week and a half away which is good considering Christmas and New Year.
Whilst a clear smear is a good thing, it is not a diagnostic test for endometrial cancer- it is just checking for the presence of HPV. If it came back as positive then there would have been further investigation. The pelvic ultrasound is somewhat reassuring as if no hyperplasia or anything obvious was present then, it would suggest that the cancer found in the biopsy is more recent.
Hopefully the MRI will show that the cancer is at an early stage and endometrial cancer is normally a very treatable cancer. For most people, where it is medically possible a hysterectomy is the first line treatment and your age will be a factor in helping you through the surgery and recovery. There are many ladies on here who are a fair bit older and still have done well.
I know it is hard to focus on much else but I know for me keeping routines up helped. Try to eat and drink etc regularly. Try a little walk. Spend time with family. All these will help if you do have surgery.
Do give the Support Line a call if it would help to speak to someone.
Jane
Im sorry for you also. It must be shock of it. I was ok yesterday but today i am broken. I had every dr and nurse assure me the whole way along at 44, having 6 pregnancies my thickened lining would be to do with peri menopause or endometriosis cancer was v unlikely. I believe my biopsy was not seen as urgent either although I think ive just made myself think this. I have to have mri to show them what they are dealing with and if its anyway else that last bit is what's done me. Now I was told the pathology report had cancer low grade on it. I have also made myself think ive imagined this or this was said to settle me. Which I know professionally she would nit be allowed to do.
I understand. It is really hard. What you are feeling is very normal. Hopefully once the MRI is done and there is a treatment plan in place, you should feel things are a little more under control.
Hi Ma80,
sending positivity I’m sorry to hear your news , it’s a lot to take in. I’ve Just been diagnosed with stage 3C endometrial cancer at 52, with no real symptoms.fit healthy and loving life and now this… I’ve just gone through the wait for my results and am now expecting chemo before surgery but no date yet and Christmas approaching..
Sbird says good words try to not look at google, I’ve found the Macmillan help line to be so supportive and the forum here is so good. Try to keep to a routine, music helps me and be kind to yourself , I hope the results and treatment plan are soon x
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