Can't shake off fear that MRI will throw up cancer elsewhere/that it has spread

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Hi All again

I'm still struggling mentally, MRI is this Thursday.  I have low-grade/grade 1 endometrial cancer detected from a polyp, no evidence that it has spread to my cervix following a biopsy on my cervix too.  I didn't have any symptoms, polyps were found during a scan, I have adenomyosis and suspected endometriosis.

I have met with my lovely GP Practice Nurse today and she was amazing, she's increased my anxiety meds and she has sought to reassure me that I will definitely be fine, that she sees lots of ladies in my position etc.

I've had so much reassurance from my consultant and CNS too, together with lovely nurses at Macmillan.

However I can't help thinking that the MRI will show that the cancer has indeed spread or will pick up a cancer in another part of my body not linked to this cancer.

I'm quite irrational at the moment (see previous posts!) but is my fear re. the MRI making these detections a normal fear to have?  Does everyone feel this way?

Once again, thank you 

  • Hi Lizbot, yup we all feel much the same between diagnosis and scan, and then again between scan and results. The waiting is stressful but it’s possible to find a way through. Could I make a suggestion? How about making a new post and asking for tips as to how we all got through it? You might find that hearing about a particular coping mechanism resonates with you and it may help. 

  • Hi

    I felt the same before my CT- I was worried it would show up something unexpected. I think it is really common. My cancer was in 2022 and an aggressive type and I still think every ache and pain means the worst. 

    Its not long now- maybe think about how you will spend tomorrow, what you will do and just try to keep as busy as you can. I know it is hard to focus on much else but I did find keeping busy helped. 

    Also try to think of the scan as a positive thing. I know you are scared it may have spread but without the scan you would not know for sure. The treatment you then get will perhaps not be the best suited. The scan is to work out where the cancer is in your body so it can be best treated. Without the scan there could be cancer that is missed and although it is frightening it is an important step. IF there is any possibility of any cancer elsewhere then it is far better to know at this stage. 

    The scan will hopefully show that your cancer is indeed at the earliest possible stage and grade and that the treatment will be the hysterectomy. If it is then that may well be the only treatment needed to remove all the cancer. 

    Either way- it is better to know. This limbo stage is hard- you have the diagnosis and are just waiting for that final bit of information. Hopefully this time next week you should have some answers. 

    Jane

           

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