Told today I may have possible womb cancer aged 36

Hi El

Welcome to the Womb group.

I understand that it is a worrying time for you and I hope that you get answers very soon. 

It sounds like the biopsy was done due to hyperplasia (the thickened lining) but that an insufficient sample was taken to say for certain. This is why the biopsy was repeated. I wonder whether atypical hyperplasia was mentioned? This is essentially a condition where the hyperplasia is more of a concern because in time, in some people it could become cancerous- so its a sort of pre cancer condition. 

For this condition a hysterectomy may be offered as treatment. If cancer was present then the first line treatment is normally a hysterectomy. 

Where an MRI/CT is needed then this is normally done quickly. The scan will hopefully show that the issue is confined to your womb.

My CT was done before diagnosis and I think that sometimes they just like to have all the information available so they can make a clear diagnosis and a clear plan for treatment- whether that be for a pre cancer or a cancer. 

Hopefully it will come back as a pre cancer but if cancer is found then endometrial cancer is normally a very treatable cancer. 

I hope your MRI goes ok tomorrow and that the results come back quickly. In the meantime do give the Support Line a call if you feel like talking things through would help.

Jane

Hi Jane, 

Thank you so much for taking the time to reply with such a thoughtful and informative message - I really do appreciate it. 

He mentioned hyperplasia but not with atypia specifically but I have read lots of information on it so I’m aware that’s what is causing the thickening/abnormal cells. I’m trying to stay positive that this is a pre-cancerous condition only and we’ve caught it before it becomes cancerous. I will be going down the hysterectomy route either way, I just want my uterus out now! I hope I can keep my ovaries to prevent early-menopause as I’m only 36, but I’ll go with whatever the consultant/oncologist suggests is best. 

I know I’m in good hands and the treatment I’ve received so far has been amazing. 

I’ll keep the post updated.

El x

Hi all, 

Just updating so others going through a similar situation have some insight and do not feel alone!

I had the urgent pelvic MRI with contrast this afternoon after being referred yesterday. The MRI was not half as scary as I worked myself up to think it would be and neither was the cannula (I’m a real wimp!). The radiologist was happy with the images he took and the nurse assisting was so kind and warm. They both put me at ease. The scan took approx 30mins and they broke it down telling me the timings each image would take which helped. I was in and out of the appt within 45mins. 

Now the worst part of waiting for the results along with the repeat biopsy and I’ll know if it is or is not cancer. 

El x

Thinking of you and sending hugs. Hopefully your results come back quickly x

Just an update following my appointment today.

Confirmed cancer stage 1a grade 1. I’ve decided to have a hysterectomy which will be in the next 4-6 weeks. I’m not shocked, deep down I knew it would be cancer, I was more worried about the stage/grade and possible spread. Apparently only 2% of cases are in women my age (36). Having a diagnosis and treatment plan is a massive relief. Now to focus on surgery and recovery.

El x

Hi, I just want to say I think you are being incredibly brave as this is a very stressful time. I am in awe of your courage in making the decision to have a hysterectomy as I have chosen not to go that route. I hope they are leaving your ovaries so you don’t have a surgical menopause.  Wishing you all the best with your surgery and recovery. You are a strong lady.

Hi Cherry, thank you so much for your message. They plan to keep my ovaries as they look healthy from the scans I’ve had, I want to avoid menopause for as long as possible! However if 1 or both look abnormal during surgery, I’ve told the consultant to take them too. It was quite an easy decision for me, I don’t want children and I’d rather just have the surgery now whilst I’m fit and healthy however everyone is different and you have made the right decision for you. I hope you can enjoy your Christmas (if you celebrate it!). Take care, El x

It sounds like you have a great surgical team that are listening to you. Although I’m older than you I still haven’t hit peri yet and they are insisting on taking my ovaries, which is why I’m not electing for surgery. Hoping that the progesterone can reverse my issue.