Told today I may have possible womb cancer aged 36

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Hi all,

Ive been told today following an US on 6th October showing a thickened lining of 27.5mm and biopsy on 26th October that abnormal cells were found and I was being referred for an urgent MRI. I asked twice if cancerous cells were found and was told no, but there’s a 40% chance there are cancer cells they just weren’t picked up in the initial biopsy. Whilst in my appointment, the oncologist called the consultant and asked he re-do the biopsy, taking as much as possible for analysis again, which he did. 

The consultant discussed treatment options, whether it is or isn’t cancer/only pre-cancerous, and as I do not want children, the hysterectomy route would be recommended, for both cases. 

An hour after my appointment, I was called regarding the MRI which has been booked for tomorrow afternoon. I am absolutely terrified. It’s amazing how quickly I’m being seen, but that’s only making me more panicked! They can’t win! I am very grateful for the quick turnaround.

Just need some words of encouragement/advice. I have not been told I definitely do have cancer, but I’m sick with worry. 

Thank you

El x

  • Hi El

    Welcome to the Womb group.

    I understand that it is a worrying time for you and I hope that you get answers very soon. 

    It sounds like the biopsy was done due to hyperplasia (the thickened lining) but that an insufficient sample was taken to say for certain. This is why the biopsy was repeated. I wonder whether atypical hyperplasia was mentioned? This is essentially a condition where the hyperplasia is more of a concern because in time, in some people it could become cancerous- so its a sort of pre cancer condition. 

    For this condition a hysterectomy may be offered as treatment. If cancer was present then the first line treatment is normally a hysterectomy. 

    Where an MRI/CT is needed then this is normally done quickly. The scan will hopefully show that the issue is confined to your womb.

    My CT was done before diagnosis and I think that sometimes they just like to have all the information available so they can make a clear diagnosis and a clear plan for treatment- whether that be for a pre cancer or a cancer. 

    Hopefully it will come back as a pre cancer but if cancer is found then endometrial cancer is normally a very treatable cancer. 

    I hope your MRI goes ok tomorrow and that the results come back quickly. In the meantime do give the Support Line a call if you feel like talking things through would help.

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi Jane, 

    Thank you so much for taking the time to reply with such a thoughtful and informative message - I really do appreciate it. 

    He mentioned hyperplasia but not with atypia specifically but I have read lots of information on it so I’m aware that’s what is causing the thickening/abnormal cells. I’m trying to stay positive that this is a pre-cancerous condition only and we’ve caught it before it becomes cancerous. I will be going down the hysterectomy route either way, I just want my uterus out now! I hope I can keep my ovaries to prevent early-menopause as I’m only 36, but I’ll go with whatever the consultant/oncologist suggests is best. 

    I know I’m in good hands and the treatment I’ve received so far has been amazing. 

    I’ll keep the post updated.

    El x