After months of back and to my last ultrasound showed a fast growing vascular mass in my uterus and ca125 marker of 65. The abdominal and back pain is awful. Awaiting next steps but it's been a week now
I am a breast cancer survivor 10 years does the marker vascular nature and widespread pain mean this has spread as I have had symptoms for over months
Hi Gwen
It is always a stressful time waiting to find out what your treatment plan is.
What normally happens is the all your results from any scans and biopsies go to a Multidisciplinary Team where they discuss a treatment plan. They normally meet once a week. If all results are not back one week, then it would go to the following weeks meeting. If you know the day of the MDT that may help. At my hospital I would tend to have a phone call that day.
Your scans and biopsy results would have given a provisional stage and grade of cancer and they use this to work out the most effective treatment. The biopsy will have given a provisional grade which describes how the cancer cells look compared to normal cells and how they may behave. A grade 1 tends to be more slow growing and the cells are only slightly changed. Grade 2 is slightly more change and behaves a little more aggressively. A grade 3 is where the cells look very different and the cancer can behave more aggressively in some people. The stage is where abouts in the body the cancer is. So a stage 1 cancer would be contained in the womb. A stage 2 would involve cervix. Stage 3 would be where the cancer is in the pelvis. Stage 4 is where it has gone further afield.
If the cancer is shown to have spread it does not mean that treatment is not possible. The MDT meeting is about working out the best treatment.
You could contact your GP and ask if there is any news yet from the hospital and they may be able to intervene and get an update. My own GP did this. You can also discuss the pain you are in and see whether there is anything that can help. If the pain is severe or changing and you have other symptoms and can not get in touch with your GP then I would suggest calling NHS 111 for advice.
Do give the Macmillan Support Line a call if it would help to talk things through.
I hope that you get some answers soon but in the meantime we are here if you need us.
Jane
