Hi everyone.
This is my first post - sorry it’s a bit long!
I’ve had a lot of ongoing symptoms for over a year. I’ve had 3 ultrasound scans at different points in my cycle where I’ve been told my lining is too thick (13.5mm day 6, 22mm day 19 and 24mm day 21). At the last ultrasound on day 6, they identified two possible polyps with feeder vessels, and the lining of my womb was heterogeneous and indistinct.
Had an urgent hysteroscopy today under GA and was told no polyps to be seen. I’m on day 18 of my cycle so wondered if they could be hiding in my lining/not visible? I asked the surgeon how these polyps and feeder vessels would suddenly not be there less than 2 weeks later and she said “maybe they were just blood clots”.
When asked about my thickened lining she said she didn’t think it looked that thick and the scanners were wrong and measured a few mm too much. I find it hard to believe that three separate scanners over a 4 month period were wrong?
Shes biopsied the lining so will wait for those results but has anyone had similar?
I’m trying to feel positive that nothing untoward was seen but I also feel like the surgeon has dismissed my symptoms and previous scans as if they were all incorrect? It doesn’t seem right. Am I right to want to question this further? Or am I just being over anxious? Thanks!
Hi Guineapig
Welcome to the Womb group.
I am sorry to hear that you have been having some ongoing symptoms over the last year.
If you are still having periods then any hyperplasia of around 14mm or more would suggest further investigation. (For ladies who are post menopausal then it is around 5mm) A heterogeneous lining means that the womb lining is not even texture.
Both of these can have different causes. eg; polyps, fibroids etc. There can also be changes due to the timing of your menstrual cycle. While an ultrasound gives a guide to what may be happening inside, they are not clear enough by themselves to diagnose/rule out conditions. They are an aid to identify that something may be amiss and needs a further look.
When there are these types of symptoms and results from ultrasound then it is normal to have a hysteroscopy/biopsy. It does not mean that there is cancer present, more that they need to rule out the most serious potential causes first.
I understand why you feel that the consultant was dismissing the previous scans and symptoms however the biopsy is the important thing at the moment. Even if the consultant has been dismissive/vague over this the biopsy will show for certain whether there is any cancer present and if not then suggest further monitoring or treatment for your symptoms.
I don't feel you are being over anxious and having any sort of diagnostic test is always worrying. However the important thing is that you have had some symptoms and they have been correctly checked out by having a closer look with the hysteroscopy and the biopsy has been done to hopefully rule out any cancer. Once cancer has been ruled out then they can look at the probable causes of your symptoms and work out how best to treat them.
I hope that you do not have to wait too long to hear back from the hospital. My results took around a week. In the meantime we do have the Support Line available from 8am-8pm daily if you feel like you want to talk things through with one of the nurses.
Jane
I am not sure and do not want to give you the wrong information. Best thing is to give the Support Line a quick call and one of the nurses would hopefully be able to offer reassurance.
