Update

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Just thought anyone searching for answers might like to view this. I have recently finished 25 radiotherapy sessions plus 2 brachytherapy. The only trouble I’ve had was my back. I have fibromyalgia and can’t manage laying on hard surfaces (the machines). Otherwise I’ve been really well, tired the first couple of weeks but as I’ve mentioned before I think this was the train travel. One day I left home at 14:15 and didn’t get home until 21:00. I’m not complaining as the treatment is free and I’m grateful for it. Other days it might be door to door in 4 hours. The tube strike didn’t help! Although the waiting chairs were padded I still found them uncomfortable when waiting a long time (again my back). All the staff at UCH were wonderful and caring (but so young Joy). I don’t feel I have encountered any side effects. I had diarrhoea a couple of times but think this was due to the stool softener you are required to take with pelvic radiotherapy. I learnt to adjust the dose myself. Maybe I’ve been extremely lucky? I did have so many people from my old church praying for me! The most I suffered was embarrassment but even that you got used to Joy.

  • Very well done for completing your treatment! My treatment (radio and brachy) was in 2022, and I also had very little in the way of side effects - just some bloating and urgency (but no diarrhoea) in weeks 4 and 5. I was also fortunate though in that my hospital don’t routinely require enemas/stool softeners. I did also often find the days long - I could be away from home for anything between 4 and 7 hours. Hoping you continue to do well as you recover from the whole experience! 

  • Well done for finishing your radiotherapy. I also found the days tiring, with the travelling and waiting around.

    Thank you for updating us and sharing your experience, I know that it will help others who are facing the same treatment. 

    I wish you well for the future and if there is anything you need, then you know where we are.

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi I read you had radiotherapy on your pelvic area. My husband as had 4 x 10 mins treatments, the last one tomorrow. Up until tonight the only side affect had was fatigue sleeping & in bed by 7.30pm. Tonight he went.to bed at 8.30pm fell asleep, but a nerve type sensation woke him, if he puts one leg against the other its nervy & his legs feel quite heavy.

    Hes having radiotherapy onnthe iliac bone in the pelvis. I dont like to use Dr Google as it puts the fear into you! 

    I know all these treatments have endless lists of side affects. But didnt expect this as one of them.