Such a long wait

Hiya

Sorry to hear about your diagnosis. From experience I know it’s a very scary time,  not helped by the lack of good, clear communication from those who are looking after us.

I had a hysteroscopy in March, due to thickening of the womb lining picked up following an ultra sound on my kidneys.  they removed a polyp and took biopsies.  I waited 3 weeks for the results but in that time had an MRI and was booked in for a CT Scan. Before I had the CT scan I received a phone call from the hospital asking me to attend an appointment a few days later and they told me I had cancer and needed to be referred to another hospital to discuss ways forward.

that appointment was 2 weeks later. There were a couple of options offered on how to treat me and I chose hysterectomy. With lymph node removal. My cancer was grade 3 but from the scans looked contained. My op was early May.. all went well and apart from still feeling tired, I am recovering better than I thought I would.

Following the op, I waited 6 weeks for the histology results, when they finally came back it was stage 1a grade 3 with nothing found in the lymph nodes. the cancer was only in the polyp. I was offered and took 3 lots of Brachytherapy and have now entered the 3 monthly check ups system.

I’ve learnt that having cancer means a lot of waiting around for either a treatment or appointment of one sort or another. I also learnt that it’s better to be proactive about finding out what’s going on so I would contact the Consultant who called you secretary and explain you’ve not heard anything and also ask for contact details for the CNS (cancer nurse).

i know there’s a lot to get your head around but this group is so knowledgable and supportive, it really got me through a horrible time so i would encourage you to use it as much as you feel comfortable with.

take care

Julie

Hi, when you get your MRI result will likely be dependent on which day of the week your MDT (multi disciplinary team) meet. They usually review the results before we hear. I had my MRI on a Tuesday back in 2021, and was fortunate in that I got my result three days later on the Friday, because it just so happened that things were quieter that week and my result was ready and discussed that Friday morning (my MDT - Southampton - met on a Friday - MDTs usually meet once a week). As you heard previously on a Friday, it *might* mean that your MDT meets on a Friday. You could always phone your CNS tomorrow and see if she knows when you might get the results. 

Hi Lou

The waiting is frustrating isn't it. 

The MRI is done to stage the cancer and once that information is put before the MDT I would expect things to move a bit more quickly as they will have the information needed. 

My CT scan was organised before my biopsy and I had it a few days after. My results came back around a week later. 

I would consider giving them a call tomorrow and see whether there is any news. 

Alternatively you could give your GP a call and see if any results have been sent electronically to them. 

Jane