Displaced tumour cells in fallopian tube

Hi Dolly3, even scans, as great a resource as they are, can only show so much, and the surgeon never knows exactly what they will find until they operate and “get in there”. It would be brilliant if scans showed absolutely everything but they don’t. For example, post op I was told that they’d found precancerous “stics” inside my fallopian tubes which had not shown up on the MRI, were very rare and a “surprise”. If I’d not had the hysterectomy they would have travelled up to the ovaries and developed into high grade ovarian cancer. Definitely an unexpected item in the bagging area! That shook me rather and took me a while to accept and get past. From some of the words and phrases you’ve used in your post,  I do wonder if you’ve been googling. It’s understandable but honestly not wise as the info you’ll likely find could be outdated, inapplicable or just wrong, and risk scaring you even more. For me, the discovery of the pre cancer made me even more decided to have the offered radiotherapy and brachytherapy- this was offered due to a few cells found on top of where my cervix was, but the pre cancer was another consideration. The gynaecologist who saw you the other day isn’t your oncologist - they deal with different things. If you have questions then I’d suggest contacting your oncologist’s secretary and asking if you can send in an email or letter for your oncologist.

Hi Dolly

Sometimes the final pathology can throw up a few unexpected things. I know mine did.

With any scans, they only can show so much- tiny cells can be too small to be seen. Sometimes it is only when the surgery happens and the pathologist looks at it in detail that things can come to light.

However you have still been given stage 1b and grade 2. The brachytherapy that you have been recommended is to deal with any stray cells/ to try to prevent recurrence in one of the areas where it is most common. ie the top of the vagina. 

IF there was any leakage of any tiny cells during surgery (and this is not something I have come across on here) then  the brachytherapy should hopefully deal with it. If you are concerned I wonder if it is worth talking it through with your CNS and getting some reassurance. You could also contact your consultant and ask for a telephone appointment to discuss the post op results. My own consultant phoned me with mine and went through them.

After your treatment ends then it is likely that you will have regular check ups and the purpose of these is to look out for any potential signs of recurrence and also monitor your recovery. I think maybe you just need to get some clarification around this. 

Jane

Hi Dolly3

If it was me, I would want to understand what “focal displaced tumour within the lumen” actually means, and have the confidence that this was taken into consideration as part of further treatment plans. So I’m with the others in reaching out to oncologist/their secretary to have this explained. Wishing you all the best

Thank you so much , I think that’s exactly the reassurance I need to seek. 

Thank you Jane

Thank you!