I'm 22 months post op I was stage 1a grade 1 no further treatment and yesterday got told its come back for last 12 weeks had abnormal amount of discharge constantly even in bed can feel it coming out went to nurse swab was infection had antibiotics still not better contact cns they got me in while waiting started to get blood as well she said she could feel tangerine size mass top of vagina waiting for ct scan biopsy she will see me in 3 weeks to fill me in and make plan for treatment
I am so sorry to hear this, you must be very worried, hopefully you’ll understand more after your CT and biopsy. I also had a hysterectomy and no further treatment in 2021 but the cancer returned in January last year. Since then I’ve had chemo, radiotherapy and (this year) immunotherapy. So there is treatment available, in my case it’s not curative but everyone is different so hopefully you will get better news. It’s rare for endometrial cancers to return but there are a few ladies on here who are in the same situation who I’ve found are very supportive. Good luck x
Hi Sjgw
I am sorry to hear that your cancer has come back and can understand how worrying this must feel.
It sounds like your symptoms are recent and that you have got in to see your nurse quickly so hopefully it has been caught at an early stage of recurrence. Hopefully your appointment in 3 weeks will give time for your CT results/biopsy etc to go before the MDT and get an idea of a treatment plan.
In the meantime, we are here if you need us. Also remember the Support Line is there if you need to talk things through.
Good luck for the CT scan and for your treatment.
Jane
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