Hello. I have seen the orthopedic doctor yesterday and the news are not very good. The cancer has spread further into the sacrum hence I have these pains in my hip and leg. His very reluctant go give me more radiotherapy as I already had 6 doses few months ago. I asked about acupuncture and he agreed that it is worth trying and is going to refer me to the clinic.
Another thing - Know that all f us suffer with extreme tiredness while taking Lenvina last few days it has been particularly bad for me - just feel like lying down and sleeping all the time although I sleep well at night. The painful hip doesn't help. Cannot think what to do to reduce this tiredness or just have to get on with ii?
Very hard - when I wake up I am thinking of things to do round the house and then just can't be bothered! We do go out every day for walks, shopping, etc but I just feel like going back home and lay down on the sofa.
Hope you are keeping better!
Hanna
Hi Hanna
Am sorry to hear that you are having pains in your hip and leg due to the spread to your sacrum. I hope that the acupuncture will help. It does sound worth a try.
Fatigue can be really hard to manage. I will pop a link to the Macmillan booklet and it have some good ideas that may help.
Coping with fatigue (tiredness) | Macmillan Cancer Support
Jane
Hi Hanna, so sorry to hear your news sending lots of hugs and support. It is so much harder coping with the side effects of our treatment when it doesn’t seem to be working. I’m on a two week break as my body wasn’t coping, hopefully I’ll be sufficiently recovered to start again next week. The break is giving my body chance to recover, blood pressure and thyroid responding well to medication, mouth and throat virtually back to normal - which means I’m able to eat and drink again, nausea and tiredness decreased, joint & muscle pain reduced so I’m feeling much more myself at the moment. Hopefully the tests next week will show my kidney function is recovering sufficiently too to restart.
I’m seriously impressed you get out every day for a walk etc. some days I wasn’t getting out of bed as I was so tired so don’t beat yourself up, listen to your body. I know how difficult it is to want to do stuff but equally have no energy to even think about it but try not to get too frustrated. We’re moving house and it drives me potty that I have a long list of “stuff to sort” but normally no energy to sort it. I’m driving everyone mad this week while I feeling better by getting them to make decisions and tackle jobs that need doing while I have the energy to wield the whip :)
Mary xx
Hello Mary, yes I think a break from the medication is a good thing. I will have one shortly I hope as I have to have back tooth out and you have to stop the tablets a week before, my dentist wouldn't do it because of my medical situation and referred me to hospital so just waiting for an appointment. Also I am waiting for acupuncture for the pain in my hip and left leg as the orthopedic doctor didn't think I could have more radiotherapy at the moment. I found waiting for the appointments just adding to the misery!
Yes I force myself to do things but anything involving bending is painful, walking is reasonably ok but it isn't the same anymore. Yesterday we went out to eat, I couldn't swallow anything! brought the dinner home with me. I just didn't feel like eating at all. Had something later.
Are you downsizing? Lucky you! we should have done it years ago, now I just can't be bothered going through the rubbish which we have plenty. The house is too big for the two of us anyway, ideally a bungalow would be best for us. Maybe when I feel better will think again. My review with the oncologist is on the 12 June, another long wait.
I am glad that you are feeling better, hopefully when you go back on the tablets the side effects won't be as bad.
Keep well and will be in touch
Hanna xxx
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