Just wondering if anyone else has had a DVT whilst on Carboplatin & Paclitaxel.
I had a CT done about 3 weeks ago. The oncologist requested it to get a new baseline after the radiotherapy/Cisplatin treatment. They then called me 10 days ago to say they found a clot in my lung and put me on anti-coagulants.
This week I had to call the helpline due to severe pain in my left leg which I thought was due to the lymphoedema which arose after the radiotherapy. However a Doppler test found DVTs in the same leg.
The doctors have said just to continue with the anti-coagulants and they should disperse the clots and prevent more from occurring.
So I’m just looking to see if anyone else has had this and if the anti-coagulants were enough to resolve the issue or if not what other treatment you had.
I would contact your GP to ensure that you've got everything covered ongoing. Not just anti-coagulants but how much exercise etc....that is safe to do at this time. They may recommend support tights for a while as well but I would have thought the first port of call would be your GP.
Hi EP17
Am sorry to hear that you have developed some clots during your chemo.
You have done the right thing in calling your helpline. Clots can happen during chemo and anticoagulants are the normal treatment. They should hopefully prevent the clots developing further and help the body disperse and reabsorb the clots. It may take some time. I am sure the oncologists will be monitoring you closely to ensure it happens.
There are different types of anticoagulant that can be used if one type does not do the job. Any changes or any other sensations- redness, pain etc- do give your support line a call straight away.
Hopefully the pain will settle once the clot begins to disperse.
Blood clots and cancer | Macmillan Cancer Support
Am sorry that you are going through this. The chemo alone can be tough.
Jane
Hi Jane thank you for the link it’s really helpful.
Im currently injecting Inhixa every day which is the same as what they gave me after the hysterectomy and it seems they’ll keep me on it for some time going forward.
My concern is centred around the fact I keep misinterpreting or missing signs that there’s something wrong. I thought the pain in my leg was just the lymphoedema and I needed better pain management when it was due to clots and actually when I got to the hospital and they took blood they found I had a high temperature and an infection (I felt fine) and put me on antibiotics.
The clots could be life threatening and it has been a bit of a wake up call to me that the tiniest symptom could be sign of something very serious and just because you feel fine doesn’t mean you are. Scary to say the least to add on top of actually undergoing chemo.
I know what you mean. During chemo, in particular, any slight symptom could mean something that could be serious. I remember during mine one evening I just felt a bit off, called the help line and was told to come straight in on sepsis alert. Luckily I got there and within the hour was having treatment and everything was checked. If I had waited the infection would have really taken hold. I didn't yet have a temperature but just felt a bit shivery and a bit off.
I think also for me the chemo made me feel so rough at times that you tend to sort of get used to different side effects and symptoms.
Hopefully the inhixa will sort it for you but if in any doubt just call them.
Hi LolaBear. I’ll ask the Drs when I’m next in.
My chemo for next Wednesday has been put back 1 week because my antibiotics only finish on Monday and they wanted more than a couple of days before giving the chemo. Also I only have 2 cycles left and other than the clot problem I thought I’d been coping quite well with the chemo. No harm in having the conversation though to see what they say and whether they think I should try an alternative mix.
That sounds sensible. I feel for you as it must be so stressful. I have a mirena coil in and whilst the risk of clots is quite low on that, I still take low dose aspirin each day, just in case. It's good that you only have 2 cycles left though, so you are on the home straight. Sending hugs!
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