Counting Lymph Nodes

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Hi folks, all the info (written and spoken) after my hysterectomy, was that two sentinel lymph nodes were taken and analysed. I met with the Chemo doc on Friday and she said that four were taken.

it’s probably not important but it’s really freaking me out because they said three out of four had cancer, whereas before I was told that one out of two did.

I can’t think of a single reason for the discrepancy, but thought someone in here might know? There are some simple but explainable reasons why I can’t find out from my surgery team, I am trying.

  • Hi Captainloo

    I am sorry that you are worrying about this. Could you contact your CNS and ask for some clarification? They will be able to look specifically for you.

    The sentinel lymph nodes are the first lymph nodes that the tumour drains into and are a way of looking to see if the cancer has entered the lymphatic system. If it has then sometimes they will look at the next lymph nodes. I wonder if this is what has happened- they took the first 2 and then checked further. 

    If there is a chance that the cancer has then the chemo is being given to mop up any stray cells. And that is what they seem to be doing for you. 

    If it was 1/2 or 3/4 then the chemo treatment would still be the same. I know for me some of the early hospital letters I had were slightly different to the post op ones and sometimes it can just help to check with your CNS and get a little extra reassurance. 

    Good Luck with your chemo. Mine was 2022 and am doing ok.

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi Jane,

    Thanks for replying. I don’t know what a CNS is, but my surgeons nurse is away, as is my surgeon. Also my operation was done in a different place.

    What you say makes sense though, and I feel less panicked now, thank you. 

    Lucy

  • Might be worth asking GP who will have been sent reports from every appointment. 

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • CNS stands for Cancer Nurse Specialist.  Often you are assigned one or more when diagnosed and they'll have sat in with the surgeon or oncologist when discussing your treatment. It may be be who you are referring to a your 'surgeons nurse'.

  • Captainloo, are you in the UK?

  • Oh ok thanks, that makes sense. I have one of those now who is arranging all my pre-treatment appointments and stuff.  It’s not my surgeons nurse, I’ve never met her and the operation was done half a country away. I don’t have a GP as such, we have a lucky dip at the clinic, and it takes weeks to get an appointment.

    Anyway it all seems very efficient now I’ve got actual cancer, and I’m grateful to everyone who decides to work in healthcare. I’ll report back if I ever get an answer about the numbers of lymph nodes. Thanks

  • Ok I finally managed to track down an answer, in case anyone else is as picky as me and gets hung up on details.

    Turns out that in the two samples they took, there ended up being more lymph nodes in there, once the pathologist looked at them under the microscope.

    Cheers

  • Well glad you got your answer, best wishes going forwards

  • Glad you had clarification. I'm kind of a details person so I know how it can feel when things seem unclear!