I'm really frightened. I'd love to hear people's stories. All I see is posts about type 1 cancer, but not much information around type 2 cancer that isn't just 'It's really bad, the most aggressive, most likely to be diagnosed at a later stage, worse prognosis' etc which is a lot to emotionally deal with as this morning I thought she just had a polyp. She's had PMB for two months, she got tests as soon as she started getting symptoms and they initially thought it was a polyp but couldn't see one in a hysteroscopy. She had a biopsy and that was what led to the serous endometrial carcinoma diagnosis today. We don't anything about the stage but I've managed to convince myself it's Stage 4 from all the googling that it's usually diagnosed at a later stage as symptoms present at a later stage. I was hoping she'd have caught it early, but this has made feel less sure especially as she's had loose stools over the last few month. Her CT scan is next week so means it'll be weeks before results.
I'd love to hear people's experiences especially reassuring and positive stories.
I can't reassure you on the stage/grade of the cancer but I do know that many people on here have had more advanced cancer and done very well. Firstly, I would say/reiterate the mantra that Dr Google is not your friend at times like this and it's much better to either use reliable sources of information and/or your own GP/Medical team and tests results.
Sometimes you can scare yourself reading stuff online so it's better to wait until your mum gets her results. The scan will tell whether the the cancer has spread or not and a lot of other information. I know it's hard, but I would try not to worry too much until you have the information at hand and then liaise with her team to plan treatment. Any stage of cancer is bad and even early stage needs rigorous attention, so you are in good company. I hope you get her results soon and can plan from there. There will be others along soon to give you more information but meanwhile, hang in there and try to be positive.
Hi RLove95
Welcome to the Womb group.
I am sorry to hear that your Mum has had a diagnosis of endometrial cancer and I understand how worrying this must feel at the moment.
Firstly- I had a type 2 cancer- I had surgery, chemo and radiotherapy in 2022. I have not had any recurrence and remain well from the original diagnosis. I do have some side effects that have lingered from the treatment but I am now 2 1/2 years post treatment. if my cancer did come back then there are still options for treatment.
Most endometrial cancers are a type1 and are connected to excess oestrogen and this can have different causes. Type 1 cancers can be a grade 1 or a grade 2. Grade 1 tend to be slower growing. Grade 2 is sort of in the middle. Type 2 cancers are grade 3 and can, in some ladies, behave more aggressively- this means that they can spread more easily- it doesn't mean that they necessarily have- but the potential is there. The trick is to catch them at an early stage and treat them effectively.
For most ladies, where medically possible the first line of treatment tends to be a hysterectomy with the aim of removing the cancer. For early stage and grade cancers this may be enough. Some ladies go on to need further treatment.
The difference with a higher grade or type 2 cancer is that the extra treatment tends to be done at an earlier stage.
The stage of cancer will be important and the CT scan will show where abouts the cancer is. A stage 1 cancer is contained within the womb. A stage 2 would involve the cervix. Stage 3 would be where there is spread within the pelvis and stage 4 is where it has gone further afield. The CT scan and biopsy results will give a provisional stage and grade.
After surgery (if Mum has surgery) then the post op results will confirm the final staging and grading and this is the information they need to confirm whether any further treatment is needed.
if you click on my name my profile will come up, it will show my journey.
When someone has a diagnosis it is normal to want more information so I will pop a link here that may help. A lot of the information on Google is out of date and not very reliable.
Womb cancer booklet | Macmillan Cancer Support
There are several ladies on here that I have come across who have been treated for serous cancer and are doing ok. There are also other ladies who have other type 2 cancers.
I understand how scary it is and if you need to talk things through I can recommend giving the Support Line a call.
if there is anything you want to ask about or need, then you know where we are.
Jane
Hi Rlove95
I am currently being treated for stage 3C serous carcinoma endometrial cancer.
When I was originally assessed they thought it was caught early and although I had a hysterectomy with BSO they never removed any lymph nodes. A subsequent PET scan showed pelvic and iliac lymph node involvement and my treatment plan was:
25 external radiotherapy sessions (daily) concurrent with weekly Cisplatin chemotherapy cycles
2 internal Brachytherapy sessions
4 cycles of Carboplatin/Paclitaxel chemotherapy given every 3 weeks.
Currently the radiotherapy and Cisplatin is complete and I’ve had 1 cycle of the Carboplatin/Paclitaxel.
I have to agree with LolaBear re Dr Google. I’m an inherently nosey person and do researching as part of my job so of course I was straight into Google and scared myself silly before meeting my Oncologist and had convinced myself that there was no hope.
My advice would be don’t google because there is too much false information out there and to compile a list of questions with your mum for her appointment with the Oncologist and take a note book to record the answers.
My consultant appointment was very positive and not rushed. She took great pains to explain the implications of the scans and pathology results and how the treatment plan was devised and she answered every single one of the questions we had.
So far I’ve coped ok with the treatment. I’ve had side effects of course but I’m nowhere near as ill as I thought I would be with the treatment.
Please try to stay positive. Not easy I know especially when waiting for the scan results and confirmation of the treatment plan but know that here are many of us here willing to share our experiences and provide support when you and your mum need it.
Pam xx
Thank you, yes I feel like Google and ChatGPT has worked me up. But any time I try to relax and not frantically search stuff, it all becomes even more real and my mind goes places where I don’t want it to go so it’s almost like I’m frantically searching for information that it’ll be okay and there’s hope but it’s hard when I’m seeing stats like only 0-15years for longer than 5 years at stage 4
Im going to try stay positive and keep calm cause I can tell she’s sensing my stress and I just want to be there for her.
Thank you so much for sharing your story. I think hearing the stories help a lot cause statistics just feel so doom & gloom. All I keep thinking is how much I wish she had the more common, less aggressive type. I’ve not been able to eat all day, and just feel like I’m dreaming a very awful dream
I know what you mean. It's like a nightmare at times for me, when I wake in the early hours thinking about things. However, I have somehow trained myself (most of the time!) to change my behaviour and take each day at a time. It does take practice though - but I can see you are doing your best to support your mum and that's all good. Sending best wishes at this time.
I was diagnosed with Serous Endometrial Cancer in August 2025. I had a radical hysterectomy at the end of September. I had my ovaries, fallopian tubes, womb and omentum removed and had 5 lymph nodes sampled. I had 6 rounds of Paclitaxel and Carboplatin starting in November. The Chemo treatments required someone to pick up the patients so my husband drove me. I received 22 out of 25 external radiation treatments so far and will finish next Wednesday. I am tolerating the radiation far better than I expected to. I drive myself to treatments. My energy levels are not bad and I feel ok so far. My doctors told me that they are optimistic about my future so I will be too. I am a mad googler so I have read a lot about Womb Cancer and various studies. There are other treatments that can be used if the initial treatments do not work. Immunotherapy treatments are the next line of treatments and seem to work for many people.
Hopefully your Mother will do well with her treatments. Best wishes.
Thank you Pam ️
I’m a researcher by profession too so have been struggling to resist searching everything up as it’s almost like I’m looking for something that will reassure me but only finding scary information.
The uncertainty is very hard to deal with.
I'm sorry to hear your mum has a diagnosis of endometrial cancer.
This is a great forum for support. If you find yourself heading off to Google I found it helped me to direct my search to what support was available locally. Macmillan has links you can search that can direct you. GP surgeries sometimes have support too. I found it good to know what was out there if and when it felt appropriate.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007