Hello again,
I got my diagnosis of endometrial cancer on 5th March and told I am still 6 to 8 weeks away from having a hysterectomy with bilateral salpingo-oophorectomy. So that would take me upto 10th June at the latest.
My concern is the length of time from diagnosis to treatment is likely three months and I am worried what might my happening with the cancer during the wait time.
Seeking advice and anyone else's experiences please.
Hi Jet1, was the diagnosis after a hysteroscopy and MRI or CT? Have you been given a predicted grade and stage?
Hi Jet1
I can understand your concern and I remember that once I had my diagnosis, I just wanted the surgery done and the treatment out of the way.
Many low grade endometrial cancers are slow growing and although they can spread, it can take some time. If the cancer is still contained within your womb- so a stage 1 or 2 and also of a lower grade the wait- although not ideal is hopefully unlikely to make a big difference. I am sure they would of taken into account the grade of cancer when making the decision. A more aggressive grade would have more chance of causing issues if surgery was delayed.
When you had your diagnosis were you given a provisional grade and stage of cancer?
I would also ask whether there is any chance of the surgery being moved forward if there was a cancellation at short notice. Another thing you could ask about is whether there is a possibility of having the surgery at another hospital or with a different consultant if it could be done more quickly.
Another thing to possibly ask about is whether it would be helpful to take a hormonal treatment while you are waiting for the surgery. I am not sure if this would be possible in your case, but for some ladies whose surgery is on hold for medical reasons- progesterone is given to treat/stabilise the cancer.
I believe the aim is to start treatment within 62 days so it is worth talking to your hospital to see if there are any other options and to get some reassurance.
Jane
I had a diagnosis in May last year, didn't get surgery util Christmas time. However they did give antioestogen and progesterone tabs from July last year u til surgery was done . ( I had a stroke, I had to wait at least 6 month post stroke for surgery, if I hadn't had the stroke I wouldn't have had a bleed for a while longer.)
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