Undifferentiated Carcinoma

Hello Sarsaparilli

Welcome to the Womb group. 

I am sorry to hear that you have had a diagnosis of a suspected undifferentiated carcinoma. I understand that this is a scary time for you. 

It sounds like you have probably got one of the rarer type 2 endometrial cancers and these are grade 3. Grade 3 simply means that the cancer cells look a lot more different to the normal cells and that in some ladies they can behave more aggressively. They are still very treatable and it sounds like yours is at a stage 2 which is an early stage cancer. 

I also had a rarer type 2, grade 3 cancer and I am doing ok 2 and a half years post treatment. 

It sounds as though the potential blood clot is being dealt with by the blood thinners and that this has had an effect on your discharge. Have you spoken to them about the change? It may be an idea to update them. During my diagnosis I remember my CNS saying that if I ever had bleeding that was heavy enough to soak a pad every hour or if I passed blood clots I had to call the hospital or NHS111. I would imagine that being on blood thinners this would be particularly important for you. 

First line treatment is normally a hysterectomy where it is medically possible and it sounds like the PET scan is a routine thing to do to check that surgery can go ahead. 

I can understand it is a worrying time and I hope that you can have your PET scan quickly so the surgery can be done. I know myself that once I knew I had cancer, I just wanted the surgery to happen. 

There is a bit of information here on endometrial cancer that is here when you are ready to have a look. 

Womb cancer booklet | Macmillan Cancer Support

I hope that you have support around you but it can sometimes help to talk things through with someone outside of the situation. We do have the Support Line that is available 8am-8pm daily. So do please give it a call if it would help.

If there is anything you want to ask about or need, please do so. 

Jane

Hi Jane, 

Thank you so much for your reply and reassurance.  It’s a rollercoaster ride I would never have queued for! 

i had a meeting with the tunes team on Wednesday, they were expecting the discharge and as I’m mainly spotting on a pad and from wiping they are not too concerned.  As you have said, they said not to hesitate going to A&E if I started bleeding heavily, but they’re not expecting it. 

I am so glad I have found this group.  I have my family and friends but feel very alone so finding you to give me some relief from my dark thoughts is an absolute godsend. 

Elaine. Xxx

That’s the gynae team!

Just wanted to say I loved your comment about it being like a rollercoaster ride you would never have queued for. 

I can’t comment on what you’re going through but this forum is amazing for the support they give you. 

it certainly has helped me in my journey 

sending you lots of love and all I will say is you can do this. You will get off that rollercoaster x

Thank you so much.  I already feel comfort I truly do. X

It is indeed a rollercoaster ride, but we will support you. 

Anything you need just ask 

Jane

I also liked your comment about rollercoaster you would never have queued for.

This forum is brilliant, very informative and supportive.

i hope you get the PET scan quickly and then get the treatment you need.  For me, the period of tests, scans and various views before they had all the information, was the most stressful part for me. ( I had a PET scan after MRI scan, so they could check out one of my misbehaving lymph nodes, Nothing showed up in the lymph nodes but gave them more information prior to surgery, and also made them decide not to touch the lymph nodes in surgery but zap them afterwards. I was glad I had the PET scan once I knew their thoughts and plans).

wishing you all the best

Thank you.  It’s so comforting to speak with people who know what I’m going through.  My close ones are trying their best but they don’t understand the struggles.  The physical side I have 100% faith in my doctors, the mental side is the hardest for sure. X

Hello Sarsaparilla

I now come on here every now and again and your story and emotion really  touched me.

I was diagnosed after hysteroscopy with Grade 3 Endometrial Serous Cancer late 2021 with a complete hysterectomy performed January 2022. I can tell you it was a very scary time for myself and family and after researching on the web all I could think of at the time was this was it and I was going to die!

My faith, positivity and this group helped me more than words can express and I am forever thankful,like you said, you have family and friends but they cannot understand what emotions you are feeling right now, we do......

So I think right now you're in the 'fuzzy' stage of trying to take things in, uncertainty of what's happening next, many questions unanswered etc, please bear with it and trust the professionals and soon hopefully you will be in the next phase and then start recovery journey, we will be with you all the way if you want. 

Please do not be hesitant in asking any questions that come to mind, you will be helping others too as there's always someone who is probably wondering the same and you always get an answer. 

You can read my story or timeline by clicking on my name, hopefully gives an indication of what to sort of expect, most of all I would like to give you a lifeline of hope, Today I am here and well and enjoying my life, 6 monthly checkups are the reminder that I have come through and was all worth it. Have a good day xx

Wow thank you.  I can’t express how grateful I am knowing I’m not going to ‘die’ from this because as you know, that’s where my head is at the moment!  You are all wonderful and amazing to take the time to tell me your stories as well. I will read all of your journeys to give me the hope I now know is there. 

Elaine. Xxx