Hi everyone
I'm in my third week now of waiting for the results of an endometrial biopsy, diagnostic hysteroscopy and resection of a endocervical polyp. This was a day surgery procedure under General Anaesthetic (GA).
I had thickened endometrial lining back in 2018 and a hysteroscopy with the coil fitted.i didn't have a GA at the time and the pain was worse than when I had my children. I do feel guilty for asking for a GA this time.
My journey started back in December when I had severe pain most of the month (spotting and heavy periods). The consultant wrote on my discharge summery "post menopausal bleeding". I am on HRT therapy which started 5yrs ago. I was told yesterday by the Gyne secretary my results would be typed up and in the post today. Do they usually do this if results are clear? I am on a fast track pathway. I would rather they just said I've been referred back to GP on the phone than wait for the post. The waiting is taking its toll on me mentally as I still have symptoms.
I did inform the Gyne secretary if I am referred back to GP they will most likely refer me back to Gyne. The menopause practice nurse wants to put me back on the miranna coil but I have a posterior lying cervix, it's so painful because my cervix is a "long way to get to" . I have a family history on both sides of female cancers. All this added waiting to tell me I don't have cancer by a letter in the post is unnecessary. Sorry for long post I'm at the end of my tether with it all. The internal ultrasound was back in January. It's definitely not a 2WW for us patients. It's a constant worry from the onset of symptoms. I just know something isn't right up there this time.
Hi Beccaboo
Welcome to the Womb group.
The waiting for the results is tough.
I hope your letter comes today but if not perhaps give your GP surgery a call. Whenever I had a letter through from the hospital it could take up to 7 days, however my GP would be sent the letter electronically. So it could be possible that the GP has already got it through the system. Worth a try.
It is frustrating when the consultant's secretary has the information that you want and is not allowed to tell you over the phone. For me it has always only been the consultant who has given results. Once I moved to the nurse team, then it was them that I spoke to. The secretary was only ever able to take messages or look at appointment times etc.
You should not feel any guilt for having the procedure done via GA. We all have different anatomy and it can be painful for many ladies. The main thing is they are able to get a biopsy in the way that is best for everyone.
Good luck- I hope you have some reassurance very soon but either way we are here if you need us.
Jane
Hi Beccaboo,
Never feel guilty for asking for GA, we are all different with different pain thresholds, nothing clever about being ‘brave’ and suffering, make your experience as comfortable as possible for you. Prior to my hysterectomy I went to the group meeting with the enhanced nurse and she said to us all “do not suffer in silence, you do not have to be in pain because you have had surgery, we have a whole cocktail of pain relief from paracetamols to morphine, if you are in pain we ain’t doing our job properly” …. that conversation really reassured me as I was terrified of having my Op and it will stay in my mind forever.
All the best in the future for you.
Thank you so much Jane. I have just literally got off the phone to the doctors and they told me my results are in the lab. I had a bad day at work yesterday with pain. Pain was so bad last night I almost had call 111but thankfully it didn't come to that. I am on maximum pain relief now. Its 3 wks tomorrow since biopsy taken.
I now have bloating and wind but the wind doesn't ease the pressure. I just want someone to put a valve in so all the gas or air can be released. Sorry for over sharing. My stomach is gurgling away! I'm hoping the results are taking so long because they are normal and it's just a hrt problem. I'm starting to feel like I'm going crazy and it's all in my head. I have Omeprozol now to take. Thank you for reading this. I'm really hoping I won't need the macmillan support. You guys are there for those who need it xx
Sorry to hear you are having such a rough time. Did the GP give you a timescale for getting the results back from the lab? It really is an awful time when you are waiting, we have all been there. Please don’t think it’s all in your head. There is something, and hopefully you will hear very soon, so you know what it is, and can get help to resolve.
Thank you so much Waidh. They haven't given me a time frame. I just have to wait. I heard it takes four weeks! My frustration is.. that's fine but don't tell me it's 2ww and then lie on the phone to me and say a letter is being typed up and in the post after I managed to get hold of the secretary on Tuesday.
My thoughts are like a swinging pendulum. I go from I don't have cancer to omg I do have cancer. It's hard because I have all the symptoms of uterine cancer. If one more person tells me to not Google i think I might just come back with "you would do the same"
So far I've been told by people at work maybe it's stress, all I could reply "I get the pain and bleeding when I'm happy too".
I'm now thinking as soon as I get the all clear I'm going to get back to how I was and take running up again and be as healthy as I can be.
Thank you for listening to me rant. I need to try and forget about it. How are you? Are you ok? Xx
Am sorry that you are having a rough time. If you get pain like that again, call NHS111- its what they are for.
With the wind perhaps try chamomile tea. ginger or peppermint helps some people.
And the Support Line is as much for you as anyone else. So don't hesitate if you need to call.
The length of time it takes to get the results has no bearing on whether they are good or bad- its just how busy the lab is. For my biopsy it was around a week, for my post op it was around 3 1/2 weeks.
Most people google- I know I did and its natural to want to find out as much as you can. The only thing I would say is that when I did, I scared myself silly. Its not always accurate.
I really hope you get your results in the next few days. In the meantime we are here if you need us.
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