Thickened womb lining

Hi Lucem

Welcome to the Womb group. 

It sounds like you have already been through a lot with your previous breast cancer. I can understand how upsetting and scary it must be to now be having tests due to having a slight bleed. 

Tamoxifen can cause a thickening of the endometrium and this may well be the cause for you. However whatever has caused it, it needs investigating. This is normally done on the 2 week referral. The first step with any bleeding is normally the TV scan that you have had. When this picks something up, the next step is the hysteroscopy and biopsy. This is still very much to try to rule out cancer. A thick lining can have different causes but it is important to rule out the most serious potential cause first. 

I can understand that it is scary but you have done the right thing in getting it checked. It may well be that the hyperplasia (thickened lining) is due to something else but without the biopsy and closer look they can not be sure. 

If it does turn out that any cancer is present, early stage and grade endometrial cancer is usually very treatable. 

I know how tough it is when you are waiting to have the test and then to wait for the results so please do post on here and ask about anything you want. There are lots of lovely ladies on here who will have been where you are now. 

We also have the Support Line from 8am-8pm daily, if you feel that talking things through would help.

I wish you well for your hysteroscopy and biopsy next week and please do let us know how you get on.

Jane

Hey Lucem 

How are you feeling this morning, fairly the same I’d guess?

I am sorry I cant be of much help except giving you peace of mind that the procedure WILL be worthwhile giving answers- although as you’ll know from bc previously, these will keep you waiting a few weeks even when rushed.

Are they doing it laparoscopically? That’s how my endometriosis was diagnosed & originally helped but never worries about the lining or need for biopsies. Saying that though they’ve never mentioned my ovarian cysts & now we know from a private pelvic mri 2 years ago, that there is a rather large fibroid too!

currently I am awaiting my transverse colon histology/biopsy results which is tedious making me worse from the worry! It was confirmed by email I am still on the cancer pathway under a colorectal surgeon & colleagues were chasing the lab for my reports…

that aside- things flag up similar to you symptom gynae wise. Early last year eventually after weird iron results they put me on a no break pill  agreeing likely perimenopausal. Now I don’t believe that’s the case- gynae links to my bowel & weight loss!

oh so I’ve had zoladex injections but was left on them nearly 3 years learnt they weakened bone density so stopped. After that periods just all over the place never a full 1 never just heavy or light sometimes constant or recurring every few days & the in between discharge, just great fun as you must know. Same with brain fog hot/cold flushes severe sweats all put down to that it made sense as mum started at 40. 

But then finally they listen about my bowel/stomach thanks to drastic unwanted weight loss since early December alongside nausea vomitting constipation then the reverse blood appearing both places at once- HORRIBLE & have to try keeping calm. They ignored my bladder complaints for months eventually got ultrasound tests which were clear yet diagnosed pelvic floor dysfunction from physio… now that’s worse but also makes more sense.

sure there is more I can put but that’s the bulk for now.

sorry for a long message but wanted to point out similarities & ask about those particularly.

Love C Xx

Hi Lucem

I'm so sorry to hear about your on-going issues. I am in a similar position and have a lining of 47mm and polyps along with a ridiculous amount of bleeding. This was diagnosed mid Jan and I had my biopsy on the 14th Feb and am waiting the results, although already tentatively booked in for hysterectomy in 7 days time. The womb lining thickening can be caused by things other than cancer, and as my consultant explained, it can be like a pre-cancer sign as well as caused by your drugs you've been taking for BC. My mother also had womb cancer which is why I am booked in for a hysterectomy as I am also considered high risk. But I am still to find out what, if any, stage I am at.

I was terrified about my hysteroscopy but it wasn't anywhere near as bad as I imagined. To be honest the waiting for results has been far worse. I am trying to keep myself busy and telling myself I will worry about it when I have something to worry about otherwise I am wasting my time and energy for something I cannot change. Good luck next week.

Oh bless you lovely. Thank you for your message. It's just all such unknown isn't it and very triggering due to my previous diagnosis. The gynecologist said to me I'm not saying it is anything sinister but to me the fact tht it could be is enough to worry me.