Reassurance

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Hi all, I wanted to share more of my recent experience here and would love to keep this thread as positive as possible. 


I am 62, not sporty and average about 4K steps a day (bmi 25). 

Provisionally diagnosed with Grade 3 cancer which was confirmed a few days ago, five weeks post hysterectomy. This felt very scary at first diagnosis in November. 

My experience is that grade 3 doesn’t necessarily require chemotherapy which I have worried about uneccessarily for six weeks CryWeary. I only need radiotherapy.

I had to wait six or 8 weeks post diagnosis for my surgery which was laparascopic hysterectomy including a repeat hysteroscopy (as my pipelle biopsy result was inconclusive) . The consultant was correct, this had no impact on my stage one provisional diagnosis. The delay of Christmas didn’t change anything . 

My surgeon said that most of similar surgeries are laparoscopic so I feel in hindsight that I didn’t need to waste time worrying that mine wouldn’t be either. 

i really hope this helps for those a couple of months behind me in their journey. We have got this! Headspace meditation app was really helpful during early shock, plus birdsong on Spotify. 

Very best wishes ( would describe myself as anxious but brave). 

  • Well done beepeep on getting this far and also for posting this. Do you have a date yet for your radio? Mine was predicted grade 1/stage 1, revised to grade 1/stage 2 post histology and I had radio and brachy (2022). I’d describe myself as anxious but pragmatic - people described me as “positive”, “brave”, but I wasn’t, I didn’t have the energy for that, I just focussed on getting done what needed to be done and that’s pragmatism! 

  • Hello Beepeep

    Thank you for sharing your story so far. 

    I hope that you are recovering well from your hysterectomy and wish you the best for your radiotherapy. 

    It is good that you do not need to have chemotherapy and I know that it is a treatment that many people worry about.

    I also was a grade 3 and it is true that some grade 3 do not need chemo. I remember my consultant saying that there were different types of grade 3 cancer and some respond better to chemo than others. Some also have genetic features that mean that other treatments would be more suitable. Stage is also important and also whether or not there is any lymphatic or vascular invasion. There are also differences in protocol in different areas. Most grade 3 does need some sort of follow up though and sometimes this can be just brachytherapy and sometimes external radiotherapy. 

    I was stage 1 grade 3 and had chemo and then the external beam radiotherapy. 

    The meditation app sounds good and the bird song. 

    Once again, thank you for sharing your experiences so far- it does help ladies who are just going through the diagnosis process and are worried about what lays ahead. I wish you well for your radiotherapy.

    If there is anything you want to ask about the radiotherapy please go ahead. 

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi Beepeep

    I'ma almost 62 not sporty recently and steps not as many as you ..but that's a work in progress ...I am around 4 weeks behind you now just had my op, I was provisionally Stage 1a Grade 3 genetic possibly Lynch syndrome .

    Great news no chemo for you it's strange some Grade 3 do some don't, I have gone with the I will be having everything that is needed ....and then if it's not it's a pleasant surprise .

    Good luck with the Radiotherapy let me know how you get on.

    L.