Hi I have had womb cancer for just over 3 yrs and have been on hormone treatment via the coil which has worked well for me, just before Christmas I got a phone call about my last scan and the doctor said the cancer had not grown or spread but my womb thickness had gone from 15mm to 20mm, and he would see me for a face to face appointment in April, I thought this was good news until I stupidly looked at doctor Google and it said a 20mm womb thickness is really bad and death is certain very soon, so now I'm worrying my self silly and have started to bleed very heavily everyday, has anyone had a 20mm or more womb thickness?
Hi Pixie2uk
I am sorry to hear of your womb cancer.
It sounds like your consultant is on the ball and because there has been an increase in thickness, that they are getting you in to check you out. Although this can always feel a worry I would be reassured that
1) They are getting you in to check you out but it is not being done urgently, rather a more routine time. If there was a great concern then I would imagine they would want to get you in straight away.
2) The doctor confirms that the cancer has not grown or spread.
3)The hyperplasia (increase in thickness) can happen for different reasons. I wonder in your case whether the coil may be part of it. Sometimes they can review the hormone treatments to find the most affective.
4)With the appointment being in April, I wonder if the plan might be to rescan and check whether the lining has changed or returned to what it previously was. Some types of hyperplasia can improve in time.
One thing that I do feel would need to be checked before April is the heavy bleeding. For this I would be contacting your CNS (perhaps call or email) / or GP surgery. The bleeding may well be due to the increased thickness, but it needs checking. I can remember my nurse saying that any bleeding that soaked through a pad every hour was considered a haemorrhage and needed emergency treatment. I was told to call NHS111 straight away. If you are having very heavy bleeding everyday then that is a lot of blood to lose and I would expect them to want to do blood tests to check for iron levels etc.
If you want to talk things through , perhaps give the Support Line a call.
Jane
