I’m probably getting far ahead of myself as my first oncology appointment isn’t until 8th January. I’ve been told I am stage 3b and am nearly 5 weeks post laparoscopic total hysterectomy and so I am expecting both chemo and radiotherapy.
According to what I’ve read laparoscopic and robotic hysterectomies have a higher risk/incidence of vaginal cuff dehiscence.
Brachytherapy involves putting something that looks quite big inside the vagina to deliver the radiation and I’m worried that they will tear the vaginal cuff.
Does anyone have experience of brachytherapy after a total hysterectomy and if so can you advise if I’m worrying over nothing.
Thank you
Hi EP17, I appreciate that you’re worried and anxious but please stop googling! Dr Google should be struck off as he/she often scares people to death with out of date, incorrect or inapplicable info. FWIW I had 2 x day brachy (and 25 x radio) as a day patient in 2022 and the rays were delivered by a tiny probe type thing inside an applicator no bigger than a tampon. Each session lasted about 6 minutes, And the brachy nurse was very careful to choose the right size of tube for me at my planning mini CT. It was a breeze.
I know you are right about the googling but I don’t want any more surprises.
I was originally led to believe I was stage 1b or 2 but histology changed that to 3b. I never expected my bladder to be injured and to end up with a catheter for 3 weeks either.
I just want to be prepared before the therapies hence why I came here to ask the question and it is reassuring to hear your experience.
What I’d also recommend, once you’ve had your first oncology appointment, is to ask for a brachytherapy nurse to phone you. Then you can ask questions and chat things over even before your first brachy consultation. I had a few questions and told my CNS and she arranged a phone call for me and it was really helpful.
I had brachytherapy a few months ago. I was able to share any concerns at the appointment to discuss treatment which I found helpful. (I write things down I want to say in advance.) There are different sizes of applicator used to deliver the radiation and that's something they carefully check on first. I was concerned as I'd had a tear during surgery but I found the staff were great at ensuring my wellbeing at all times during sessions.
Hi I just finished 3 Brachytherapy on 2nd December and all I can say is there was no pain involved at all just like a smear test really, obvs you would prefer not to be there but it goes really quick and the nurses are lovely, don't worry you will be fine, take care Gloria x
Thank you for sharing your experiences. I’m just really nervous about what’s going to happen and the waiting for my appointment on 8th January is not helping. I know it’s only a week or so but it’s dragging in so slowly.
I’ve taken down a few notes as suggested so that I can ask as many questions when I get there.
Hi , Have you been told what treatment you will be having yet , because I didn't know my results until nearly 8 weeks post opp and what I would be having , I was Stage 1A but grade 3 and they said I only needed 3 Brachytherapy sessions, until you hear or see an oncologist you won't know what they have planned for you, take care Gloria x
Hi Gloriana777. No I don’t know what the treatment will be yet so I’m just guessing at the moment but again from what I’ve read stage 3b serous carcinoma has everything thrown at it. 8th January can’t come quick enough.
ok I do understand your fears not knowing what is going to happen but don't Google wait and see what they say, what they decide will be the best treatment for you, they know what they are doing trust them, but definitely done worry about Brachytherapy it's alright trust me , take care Gloria xxx
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